Radford Claire, Slater Penelope J, Fielden Philippa
Oncology Services Group, Queensland Children's Hospital, Children's Health Queensland Hospital and Health Service, Brisbane, Queensland, Australia.
J Patient Exp. 2020 Dec;7(6):1671-1677. doi: 10.1177/2374373520950977. Epub 2020 Aug 20.
The Oncology Services Group at Queensland Children's Hospital established an Oncology Family Forum in 2018 to enable codesign of service improvements. A total of 26 family members attended the first 4 Forums, with between 12 and 15 attendees at each. Attendees represented a range of diagnoses, were 85% female, 85% resided within 40 km of the tertiary center, and 26% were on-treatment. In a survey of attendees, 83% agreed that the Forum had improved families' service experience and 92% supported the codesign partnership and the exploration of their suggestions. A small proportion (25%) of attendees disagreed that there was enough time to share, 17% disagreed that all their questions were answered, and 17% disagreed that the Forum represented views of regional families. Respondents identified collaboration, improving understanding and communication as positive aspects of the Forums. Forums will continue to be offered regularly, augmented by videoconferencing (particularly during the COVID-19 pandemic), written responses to family questions and special interest discussion groups. The new collaborations and programs that have been initiated, codesigned, and progressed through these Forums will continue to be the focus of service delivery and quality improvements.
昆士兰儿童医院肿瘤服务小组于2018年设立了肿瘤学家庭论坛，以共同设计服务改进方案。共有26名家庭成员参加了前4次论坛，每次有12至15名与会者。与会者代表了一系列诊断情况，85%为女性，85%居住在距离三级医疗中心40公里以内，26%正在接受治疗。在对与会者的一项调查中，83%的人认为该论坛改善了家庭的服务体验，92%的人支持共同设计伙伴关系以及对他们建议的探讨。一小部分（25%）与会者不同意有足够时间进行分享，17%的人不同意他们所有问题都得到了回答，17%的人不同意该论坛代表了地区家庭的观点。受访者将合作、增进理解和沟通视为论坛的积极方面。论坛将继续定期举办，并通过视频会议（特别是在新冠疫情期间）、对家庭问题的书面答复以及特别兴趣讨论小组加以补充。通过这些论坛发起、共同设计并推进实施的新合作项目和计划，仍将是服务提供和质量改进的重点。
