College of Nursing, Seoul National University, Seoul 03080, Korea.
Research Institute of Nursing Science, Seoul National University, Seoul 03080, Korea.
Int J Environ Res Public Health. 2021 Jan 25;18(3):1047. doi: 10.3390/ijerph18031047.
Patients with heart failure (HF) may not receive enough HF education from their clinicians throughout the course of the illness. Given that information is readily accessible on the Internet, patients with HF may seek HF information online. However, the relevance of online information for patients, the health literacy demand, and quality of the information is unknown. The purpose of this study was to compare the HF topics available online with topics HF patients perceived to be important and to evaluate the health literacy demand and quality of online HF information. The most popular search engines and a website that ranks the popularity of the websites were searched to identify websites with HF information. The health literacy demand and quality of the information were evaluated using the Patient Education Material Evaluation Tool for Print Materials and the DISCERN tool, respectively. First, the HF Patients' Learning Needs Inventory (HFPLNI) was used to determine whether the websites included the 46 topics identified in this inventory. Patients with HF ( = 126) then completed the HFPLNI to rate the perceived importance on each topic. A chi-square test was used to compare the differences between the topics on the websites and those patients perceived to be important. Of the 46 topics, 39 were less likely to be included on the websites even though patients perceived that they were important topics. Information on the websites ( = 99) was not written could not be easily understood by patients and did not meet the overall health literacy demands of 58.0% and 19.8% of the patients, respectively. Only one-fifth of the websites were rated as fair to good quality. Online HF information had high health literacy demand and was poor quality with mostly generic HF information, which did not meet patients' information needs. Websites need to be developed reflecting patients' learning needs with low health literacy demand and good quality.
心力衰竭（HF）患者在疾病过程中可能无法从临床医生那里获得足够的 HF 教育。鉴于互联网上的信息唾手可得，HF 患者可能会在网上搜索 HF 信息。然而，HF 患者在线信息的相关性、健康素养需求和信息质量尚不清楚。本研究的目的是比较在线 HF 信息与 HF 患者认为重要的 HF 主题，并评估在线 HF 信息的健康素养需求和质量。使用最受欢迎的搜索引擎和一个对网站进行排名的网站，以确定具有 HF 信息的网站。使用印刷材料患者教育材料评估工具和 DISCERN 工具分别评估信息的健康素养需求和质量。首先，使用 HF 患者学习需求清单（HFPLNI）确定网站是否包含该清单中确定的 46 个主题。然后，HF 患者（n = 126）使用 HFPLNI 完成对每个主题的感知重要性进行评分。使用卡方检验比较网站上的主题与患者认为重要的主题之间的差异。在 46 个主题中，尽管患者认为它们是重要的主题，但只有 39 个主题不太可能包含在网站上。网站上的信息（n = 99）不易被患者理解，无法满足 58.0%和 19.8%患者的整体健康素养需求。只有五分之一的网站被评为质量中等或良好。在线 HF 信息具有较高的健康素养需求和较差的质量，主要是通用的 HF 信息，无法满足患者的信息需求。需要开发反映患者学习需求的网站，这些网站具有较低的健康素养需求和良好的质量。
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