基于互联网的肛门癌信息的范围、质量和健康素养需求评估。
Evaluation of the scope, quality, and health literacy demand of Internet-based anal cancer information.
机构信息
Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada,
Princess Margaret Cancer Centre, University Health Network, and Patient Education, Cancer Care Ontario, Toronto, ON, Canada,
出版信息
J Med Libr Assoc. 2019 Oct;107(4):527-537. doi: 10.5195/jmla.2019.393. Epub 2019 Oct 1.
OBJECTIVES
As there is a dearth of information about anal cancer available at cancer centers, patients often use the Internet to search for information. This is problematic, however, because the quality of information on the Internet is variable, and the health literacy demanded is higher than the average patrons' capacity. The purposes of this study were to (1) determine the most common websites with anal cancer consumer health information, (2) identify the supportive care needs that each website addresses, and (3) evaluate the websites' quality and health literacy demand.
METHODS
Medical Subject Headings (MeSH) entry terms for "Anus Neoplasms" were used in Google Canada to identify websites. Seven domains of supportive care needs were defined using Fitch's Supportive Care Framework for Cancer Care. Website quality was evaluated using the DISCERN tool. Health literacy demand was assessed using readability calculators, where best practice dictates a grade 6 or lower, and the Patient Education Material Assessment Tool (PEMAT) that computes a percentage score in 2 domains, understandability and actionability, with 80% being an acceptable score.
RESULTS
Eighteen unique websites were evaluated. One website met health literacy best practices and had a "good" quality rating. Most websites addressed only 1 supportive care domain (61%), were of "fair" quality (67%), had readability scores higher than grade 6 (89%), and had PEMAT scores ranging from 41%-92% for understandability and 0-70% for actionability.
CONCLUSION
The information gaps on anal cancer websites warrant a need for more health literate anal cancer health information on the Internet.
目的
由于癌症中心提供的肛门癌相关信息有限，患者通常会上网搜索信息。然而，这存在问题，因为互联网上的信息质量参差不齐，所需的健康素养高于一般患者的能力。本研究旨在：(1)确定提供肛门癌消费者健康信息的最常见网站；(2)确定每个网站所涉及的支持性护理需求；(3)评估这些网站的质量和健康素养需求。
方法
使用加拿大谷歌的“肛门肿瘤”主题词(MeSH)来确定网站。使用 Fitch 的癌症护理支持性护理框架来定义 7 个支持性护理需求领域。使用 DISCERN 工具评估网站质量。使用可读性计算器评估健康素养需求，最佳实践要求为 6 级或更低，使用 Patient Education Material Assessment Tool (PEMAT)评估理解性和可操作性，80%为可接受分数。
结果
评估了 18 个独特的网站。一个网站符合健康素养最佳实践，具有“良好”的质量评分。大多数网站仅涉及 1 个支持性护理领域（61%），质量为“中等”（67%），可读性评分高于 6 级（89%），PEMAT 评分的理解性为 41%-92%，可操作性为 0-70%。
结论
肛门癌网站的信息差距表明，互联网上需要提供更具健康素养的肛门癌健康信息。
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