Stoll Julia, Ryan Christopher James, Trachsel Manuel
Institute of Biomedical Ethics and History of Medicine, University of Zurich, Zurich, Switzerland.
Discipline of Psychiatry, Westmead Clinical School and Sydney Health Ethics, University of Sydney, Sydney, NSW, Australia.
Front Psychiatry. 2021 Jan 12;11:532817. doi: 10.3389/fpsyt.2020.532817. eCollection 2020.
In several European countries, medical assistance in dying (MAID) is no longer confined to persons with a terminal prognosis but is also available to those suffering from persistent and unbearable mental illness. To date, scholarly discourse on MAID in this population has been dominated by issues such as decision-making capacity, uncertainty as to when a disease is incurable, stigmatization, isolation, and loneliness. However, the issue of perceived burdensomeness has received little attention. The study explores the possible impact of perceived burdensomeness on requests for MAID among persons with severe and persistent mental illness (SPMI). Using the method of ethical argumentation, we discuss the issue of access to MAID for persons with SPMI and perceived burdensomeness. Perceived burdensomeness may be a contributing factor in the wish for hastened death among persons with SPMI. MAID is ethically unsupportable if SPMI causes the individual to make an unrealistic assessment of burdensomeness, indicating a lack of decision-making capacity in the context of that request. However, the possibility that some individuals with SPMI may perceive burdensomeness does not mean that they should be routinely excluded from MAID. For SPMI patients with intact decision-making capacity who feel their life is not worth living, perceived burdensomeness as a component of this intolerable suffering is not a sufficient reason to deny access to MAID.
在几个欧洲国家,医疗协助死亡(MAID)不再局限于患有终末期疾病的人,患有持续性且无法忍受的精神疾病的人也可获得。迄今为止,关于这一人群医疗协助死亡的学术讨论主要围绕决策能力、疾病何时无法治愈的不确定性、污名化、孤立和孤独等问题。然而,感知到的负担感这一问题却很少受到关注。本研究探讨了感知到的负担感对严重持续性精神疾病(SPMI)患者申请医疗协助死亡可能产生的影响。我们运用伦理论证方法,讨论了严重持续性精神疾病患者获得医疗协助死亡以及感知到的负担感这一问题。感知到的负担感可能是严重持续性精神疾病患者希望加速死亡的一个促成因素。如果严重持续性精神疾病导致个体对负担感做出不切实际的评估,表明在该申请背景下缺乏决策能力,那么医疗协助死亡在伦理上是无法得到支持的。然而,一些严重持续性精神疾病患者可能会感知到负担感,这并不意味着他们就应该被常规性地排除在医疗协助死亡之外。对于决策能力完好、觉得自己的生命没有价值的严重持续性精神疾病患者而言,感知到的负担感作为这种无法忍受的痛苦的一个组成部分,并不是拒绝其获得医疗协助死亡的充分理由。