Renhorn Elina, Nytell Carl, Backman Anna, Ekstrand Camilla, Hirvikoski Tatja
Habilitation and Health, Stockholm County Council, Stockholm, Sweden.
Department of Women's and Children's Health, Pediatric Neuropsychiatry Unit, Center for Neurodevelopmental Disorders at Karolinska Institutet (KIND), Stockholm, Sweden.
Scand J Child Adolesc Psychiatr Psychol. 2019 May 30;7:88-91. doi: 10.21307/sjcapp-2019-012. eCollection 2019.
ADHD causes impairment in several life contexts and may increase stress and burden of care amongst family members. There is a lack of studies regarding gender inequalities in burden sharing in families of individuals with ADHD.
The aim of this study was to investigate gendered burden sharing in families who were in contact with an ADHD telephone helpline in Sweden. A further aim was to identify perceived difficulties that prompted contact with the helpline.
During a period of 28 months (from January 2013 to April 2015), calls were consecutively registered by psychologists manning the helpline through an anonymous digital form. After exclusion of 60 incomplete forms out of 1,410 (4%), information on 1,350 calls was analysed.
The analysis indicated that mothers (82.7% of all callers) had a more important role as information-coordinators for children or adolescents with ADHD, as compared to fathers (13%) or other callers (4.3%). This pattern was also observed among the calls regarding young adults with ADHD. Helpline calls primarily concerned entitlement to academic support (57.9% of calls concerning children or adolescents) and healthcare services (80.6% of calls concerning young adults and adults).
The study concludes that a perceived lack of accessibility to and/or coordination of the school and health care services may be a major stressor for parents of individuals with ADHD. The burden of care through coordination of services and information-seeking may be especially increased in mothers of children, adolescents, and young adults with ADHD.
注意力缺陷多动障碍（ADHD）在多个生活场景中造成损害，可能会增加家庭成员的压力和照料负担。关于ADHD患者家庭中负担分担方面的性别不平等研究较少。
本研究旨在调查瑞典与ADHD电话求助热线联系的家庭中的性别化负担分担情况。另一个目的是确定促使他们拨打求助热线的感知困难。
在28个月的时间里（从2013年1月至2015年4月），负责求助热线的心理学家通过匿名数字表格连续记录来电。在排除1410份表格中的60份不完整表格（4%）后，对1350个来电信息进行了分析。
分析表明，与父亲（13%）或其他来电者（4.3%）相比，母亲（占所有来电者的82.7%）在ADHD儿童或青少年的信息协调方面发挥着更重要的作用。在涉及ADHD青年成人的来电中也观察到了这种模式。求助热线的来电主要涉及学术支持权益（涉及儿童或青少年的来电中占57.9%）和医疗服务（涉及青年成人和成人的来电中占80.6%）。
该研究得出结论，认为学校和医疗服务难以获取和/或协调可能是ADHD患者父母的主要压力源。对于ADHD儿童、青少年和青年成人的母亲来说，通过协调服务和寻求信息来承担的照料负担可能会特别加重。
