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利益相关者共识对脑瘫患儿、青少年和成人的眼控技术决策:德尔菲研究的结果。

Stakeholder consensus for decision making in eye-gaze control technology for children, adolescents and adults with cerebral palsy service provision: findings from a Delphi study.

机构信息

Cerebral Palsy Alliance Research Institute, Discipline of Child and Adolescent Health, The University of Sydney, Frenchs Forest, PO Box 6427, Sydney, NSW, 2086, Australia.

Cambridge University Hospital, NHS Foundation Trust, Cambridge, UK.

出版信息

BMC Neurol. 2021 Feb 10;21(1):63. doi: 10.1186/s12883-021-02077-z.

Abstract

BACKGROUND

Limited research exists to guide clinical decisions about trialling, selecting, implementing and evaluating eye-gaze control technology. This paper reports on the outcomes of a Delphi study that was conducted to build international stakeholder consensus to inform decision making about trialling and implementing eye-gaze control technology with people with cerebral palsy.

METHODS

A three-round online Delphi survey was conducted. In Round 1, 126 stakeholders responded to questions identified through an international stakeholder Advisory Panel and systematic reviews. In Round 2, 63 respondents rated the importance of 200 statements generated by in Round 1. In Round 3, 41 respondents rated the importance of the 105 highest ranked statements retained from Round 2.

RESULTS

Stakeholders achieved consensus on 94 of the original 200 statements. These statements related to person factors, support networks, the environment, and technical aspects to consider during assessment, trial, implementation and follow-up. Findings reinforced the importance of an individualised approach and that information gathered from the user, their support network and professionals are central when measuring outcomes. Information required to support an application for funding was obtained.

CONCLUSION

This Delphi study has identified issues which are unique to eye-gaze control technology and will enhance its implementation with people with cerebral palsy.

摘要

背景

关于试用、选择、实施和评估眼动追踪技术,指导临床决策的研究有限。本文报告了一项德尔菲研究的结果,该研究旨在就脑瘫患者试用和实施眼动追踪技术的决策,建立国际利益相关者共识。

方法

进行了三轮在线德尔菲调查。在第一轮中,126 名利益相关者回答了通过国际利益相关者咨询小组和系统评价确定的问题。在第二轮中,63 名受访者对第一轮产生的 200 条陈述的重要性进行了评分。在第三轮中,41 名受访者对第二轮保留的 105 条最高排名陈述的重要性进行了评分。

结果

利益相关者就最初的 200 条陈述中的 94 条达成了共识。这些陈述涉及人员因素、支持网络、环境以及评估、试用、实施和随访过程中需要考虑的技术方面。研究结果强调了个体化方法的重要性,并且从用户、他们的支持网络和专业人员那里收集的信息在衡量结果时至关重要。还获得了支持申请资金所需的信息。

结论

这项德尔菲研究确定了眼动追踪技术特有的问题,这将增强其在脑瘫患者中的实施效果。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc14/7874479/1db4be97a2ec/12883_2021_2077_Fig1_HTML.jpg

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