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疾病严重程度和心理健康状况不佳是化脓性汗腺炎患者产生污名化的主要预测因素。

Disease severity and poor mental health are the main predictors of stigmatization in patients with hidradenitis suppurativa.

机构信息

Department of Dermatology and Venereology, University of Health Sciences, Gulhane Training and Research Hospital, Ankara, Turkey.

Faculty of Medicine, Department of Psychiatry, Hacettepe University, Ankara, Turkey.

出版信息

Dermatol Ther. 2021 May;34(3):e14910. doi: 10.1111/dth.14910. Epub 2021 Mar 2.

Abstract

Hidradenitis suppurativa (HS) causes significant psychological distress in patients. We aimed to investigate the stigmatization level of HS patients and to determine the related physical, social, and psychological factors. A questionnaire with 22 questions about the physical and psychosocial problems related to HS was administered to 29 male and 34 female patients between the ages of 18 and 66 to evaluate the thoughts, emotions, attitudes, and behaviors of patients. Each patient filled Dermatology Life Quality Index, Beck Depression Inventory, Liebowitz Social Anxiety Scale, Body Image Scale, and 6-item Stigmatization Scale. Hurley classification was used to assess severity of disease. Patients with HS feel stigmatized depending on physical and psychosocial problems caused by the disease. Higher stigmatization scores correlated with higher scores of depression (r: .437, P < .001), social anxiety (r: .263, P: .03), and worse life quality (r: .522, P < .001), and body image perception (r: .696, P < .001). The degree of stigmatization was closely associated with the presence of painful lesions and disruption of socializing (P: .021 and .033, respectively). Disease severity (β: 5.12, P: .003 for moderate disease) and reporting feeling psychologically negatively affected due to HS (β: 4.26 P: .007) were the two main predictors of stigmatization in patients with HS. Cross-sectional nature of the study is the limitation. In conclusion, the stigmatization level of patients with HS is strongly related to disease severity and poor mental health.

摘要

化脓性汗腺炎(HS)会给患者带来严重的心理困扰。我们旨在调查 HS 患者的污名化程度,并确定与身体、社会和心理相关的因素。我们向 29 名年龄在 18 至 66 岁的男性患者和 34 名女性患者发放了一份包含 22 个问题的问卷,内容涉及与 HS 相关的身体和心理社会问题,以评估患者的想法、情绪、态度和行为。每位患者填写皮肤病生活质量指数、贝克抑郁量表、利伯维茨社交焦虑量表、身体意象量表和 6 项污名量表。使用 Hurley 分类评估疾病严重程度。HS 患者会因为疾病引起的身体和心理社会问题而感到被污名化。较高的污名化评分与较高的抑郁评分(r:.437,P <.001)、社交焦虑评分(r:.263,P:.03)、生活质量评分(r:.522,P <.001)和身体意象感知评分(r:.696,P <.001)相关。污名化程度与疼痛性病变的存在和社交障碍密切相关(P:分别为.021 和.033)。疾病严重程度(β:5.12,P:.003,中度疾病)和报告因 HS 而感到心理受影响(β:4.26,P:.007)是 HS 患者污名化的两个主要预测因素。研究的局限性在于其横断面性质。总之,HS 患者的污名化程度与疾病严重程度和心理健康状况较差密切相关。

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