Department of Dermatology, Venereology and Allergology, Medical University, 50-368 Wroclaw, Poland.
Acta Derm Venereol. 2010 May;90(3):264-8. doi: 10.2340/00015555-0866.
Hidradenitis suppurativa is a recurrent, debilitating suppurative skin disease. The symptoms are much more than just physical, but studies of its impact on patients' psychological state and related quality of life are very limited. The current study was conducted with a group of 54 patients, aged 16-65 years, who had an active, but stable, course of hidradenitis suppurativa. The aim of the study was to determine the influence of hidradenitis suppurativa on a broad spectrum of psychophysical factors. Assessment was carried out using several questionnaires, which revealed the following mean scores: Dermatology Life Quality Index (DLQI) (12.67 +/- 7.7), Beck Depression Inventory-Short Form (BDI-SF) (5.87 +/- 4.68), Evers et al. "6-Item Scale" (3.87 +/- 3.65), EQ-5D (0.66 +/- 0.23 (health index) and 56.78 +/- 18.84 (VAS)), Functional Assessment of Chronic Illness Therapy - Fatigue scale (FACIT-F) (32.06 +/- 11.01) and Quality of Life Enjoyment and Satisfaction Questionnaire Short Form (Q-LES-Q-SF) (56.44 +/- 15.17%). The results highlight the important impact of hidradenitis suppurativa on a wide spectrum of psychophysical aspects and impairment of related quality of life among patients. Our findings indicate that advancement of the disease seems to be the most important factor negatively influencing patients' well-being (p < 0.01). It is noteworthy that an anogenital location appears to impair the hidradenitis suppurativa patients' quality of life most of all (p < 0.05), but the occurrence of lesions on uncovered skin plays a crucial role in the stigmatization level (p < 0.05).
化脓性汗腺炎是一种反复发作、使人虚弱的化脓性皮肤病。其症状不仅限于身体上的,但其对患者心理状态和相关生活质量影响的研究非常有限。目前的研究是针对一组 54 名年龄在 16-65 岁之间、患有活动性但稳定的化脓性汗腺炎的患者进行的。该研究的目的是确定化脓性汗腺炎对广泛的心理生理因素的影响。评估使用了几种问卷进行,结果显示以下平均分数:皮肤病生活质量指数(DLQI)(12.67±7.7)、贝克抑郁量表-短表(BDI-SF)(5.87±4.68)、Evers 等人的“6 项量表”(3.87±3.65)、EQ-5D(0.66±0.23(健康指数)和 56.78±18.84(VAS))、慢性疾病治疗功能评估-疲劳量表(FACIT-F)(32.06±11.01)和生活质量享受和满意度问卷短表(Q-LES-Q-SF)(56.44±15.17%)。研究结果突出了化脓性汗腺炎对广泛的心理生理方面和患者相关生活质量受损的重要影响。我们的研究结果表明,疾病的进展似乎是对患者幸福感产生负面影响的最重要因素(p<0.01)。值得注意的是,生殖器部位的病变似乎对化脓性汗腺炎患者的生活质量造成最大的损害(p<0.05),但未覆盖皮肤病变的发生在污名化程度上起着关键作用(p<0.05)。