Murphy Sarah, Reilly Paul, Murphy Teresa
Public Health Informatics, Western Canada, Canada.
University of Sheffield, Sheffield, S10 2TN UK.
Health Technol (Berl). 2021;11(3):547-556. doi: 10.1007/s12553-021-00539-5. Epub 2021 Mar 16.
This exploratory, qualitative study set out to identify the encountered and perceived barriers to public health (PH) data sharing in a Canadian province with a view to assessing blockchain technology as a potential solution. A topic guide was developed, based on previous research in the area. This was then utilised for ten in-depth, semi-structured interviews with PH professionals between 27 May and 18 June 2019. Each stage of research was congruent with the philosophical underpinning of Gadamerian hermeneutic phenomenology. The major themes that emerged from the data collected were related to the information systems in use, data quality and ownership, as well as client identity management. The recurring core theme throughout all interviews was related to ineffective leadership and management, contributing to each major theme. Overwhelmingly the results show that the majority of barriers faced in this province are human-related. It is concluded that while blockchain technology shows promise for enhancing data sharing in healthcare, it is still many years away from being implemented in this Canadian province. As the results of this study indicate, there are human related barriers that could be addressed in the meantime, which are outside the scope of a technical solution. Future work should explore the perspectives of other stakeholders, such as the provincial government to fully understand the potential for using blockchain to share PH data in this province.
这项探索性的定性研究旨在识别加拿大一个省份在公共卫生(PH)数据共享方面遇到的和感知到的障碍,以便评估区块链技术作为一种潜在解决方案的可行性。基于该领域先前的研究,制定了一个主题指南。然后,在2019年5月27日至6月18日期间,利用该指南对公共卫生专业人员进行了十次深入的半结构化访谈。研究的每个阶段都与伽达默尔诠释学现象学的哲学基础相一致。从收集到的数据中出现的主要主题与正在使用的信息系统、数据质量和所有权以及客户身份管理有关。所有访谈中反复出现的核心主题与无效的领导和管理有关,这对每个主要主题都有影响。结果显示,该省面临的大多数障碍与人有关。结论是,虽然区块链技术在增强医疗保健数据共享方面显示出前景,但距离在这个加拿大省份实施仍有很多年。正如本研究结果所示,与此同时,存在一些与人有关的障碍可以解决,而这些障碍超出了技术解决方案的范围。未来的工作应该探索其他利益相关者的观点,比如省政府,以充分了解在该省使用区块链共享公共卫生数据的潜力。