Barber Claire E H, Spencer Nicole, Bansback Nick, Zimmermann Gabrielle L, Li Linda C, Richards Dawn P, Proulx Laurie, Mosher Dianne P, Hazlewood Glen S
University of Calgary, Calgary, Alberta, Canada, and Arthritis Research Canada, Richmond, British Columbia, Canada.
University of Calgary, Calgary, Alberta, Canada.
ACR Open Rheumatol. 2021 May;3(5):312-323. doi: 10.1002/acr2.11250. Epub 2021 Apr 1.
Decision aids are being developed to support guideline-based rheumatology care in Canada. The study objective was to identify barriers to decision aid use in rheumatoid arthritis (RA) within a behavior change model to inform an implementation strategy.
Perspectives from Canadian health care providers (HCPs) and patients living with RA were obtained on an early RA decision aid and on perceived facilitators and barriers to decision aid implementation. Data were collected through semistructured interviews, transcribed, and then analyzed by inductive thematic analysis. The lessons learned were then mapped to the behavior change wheel COM-B system (C = capability, O = opportunity, and M = motivation interact to influence B = behavior) to inform key elements of a national implementation strategy.
Fifteen HCPs and fifteen patients participated. The analysis resulted in five lessons learned: 1) paternalistic decision-making is a dominant practice in early RA, 2) patients need emotional support and access to educational tools to facilitate participation in shared decision-making (SDM), 3) there are many logistical barriers to decision aid implementation in current care models, 4) flexibility is necessary for successful implementation, and 5) HCPs have limited interest in further training opportunities about decision aids. Implementation recommendations included the following: 1) making the decision aids directly available to patients (O) and providing SDM education (C/M), 2) creating an SDM rheumatology curriculum (C/O/M), 3) using "decision coaches" or patient partners as peer support (C/O/M), 4) linking decision aids to "living" rheumatology guidelines (M), and 5) designing trials of patient decision aid/SDM interventions to evaluate patient-important outcomes (O/M).
A multifaceted strategy is suggested to improve uptake of decision aids.
加拿大正在开发决策辅助工具,以支持基于指南的风湿病护理。本研究的目的是在行为改变模型中识别类风湿关节炎(RA)患者使用决策辅助工具的障碍,为实施策略提供依据。
收集了加拿大医疗保健提供者(HCPs)和RA患者对早期RA决策辅助工具以及决策辅助工具实施的感知促进因素和障碍的看法。通过半结构化访谈收集数据,进行转录,然后通过归纳主题分析进行分析。然后将吸取的经验教训映射到行为改变轮COM-B系统(C = 能力,O = 机会,M = 动机相互作用以影响B = 行为),为国家实施策略的关键要素提供依据。
15名HCPs和15名患者参与了研究。分析得出了五点经验教训:1)家长式决策在早期RA中是一种主导做法,2)患者需要情感支持并能够使用教育工具以促进参与共同决策(SDM),3)当前护理模式中决策辅助工具的实施存在许多后勤障碍,4)成功实施需要灵活性,5)HCPs对决策辅助工具的进一步培训机会兴趣有限。实施建议包括:1)直接向患者提供决策辅助工具(O)并提供SDM教育(C/M),2)创建SDM风湿病课程(C/O/M),3)使用“决策教练”或患者伙伴提供同伴支持(C/O/M),4)将决策辅助工具与“现行”风湿病指南相联系(M),5)设计患者决策辅助工具/SDM干预试验以评估对患者重要的结果(O/M)。
建议采取多方面策略来提高决策辅助工具的使用率。