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银屑病认知度在普通人群中的调查:一项在线调查的初步结果。

Psoriasis awareness among general population: preliminary results of an online survey.

机构信息

Section of Dermatology, Department of Clinical Medicine and Surgery, University of Naples Federico II, Naples, Italy.

Section of Dermatology, Department of Clinical Medicine and Surgery, University of Naples Federico II, Naples, Italy -

出版信息

Ital J Dermatol Venerol. 2021 Dec;156(6):665-668. doi: 10.23736/S2784-8671.21.06822-X. Epub 2021 Apr 29.

Abstract

BACKGROUND

Psoriasis represents one of the most common skin diseases in Italy, with a prevalence of 2.9%. It has been defined as a noncommunicable disease, due to its high burden and impact on patients' quality of life. The aim of our observational study was to assess the actual knowledge and perception of psoriasis in Italian population by administering an online 10-question survey to a representative sample general population.

METHODS

An online 10-question survey was administered to a representative sample general population from September 2019 to December 2019. A representative sample of general population (age ≥18 years) was enrolled by promoting the online survey through multiple means of communication such as social sites (Facebook, Instagram) or delivering a questionnaire link in public spaces (outpatient clinic, pharmacy). All results were then collected and analyzed in graphs by the Google form platform.

RESULTS

One hundred fifty-one individuals participated in the survey. Results showed that 7.3% (N.=11) of general population were not familiar with the term psoriasis; 4.6% (N.=7) thought to psoriasis as an infectious disease and 6% (N.=9) thought that psoriasis was contagious. Interestingly, 39.1% (N.=59) of participants have never heard about targeted/biologic therapy. Our study is limited by the small sample size as well as lack of data regarding sex, age and education level of the study participant.

CONCLUSIONS

There is still lack of knowledge of psoriasis among general population, representing an obstacle for patients' everyday activities and quality of life. Future studies to investigate the details of this impaired knowledge and new psoriasis campaign on large scale should fill this gap are required.

摘要

背景

银屑病是意大利最常见的皮肤病之一,患病率为 2.9%。由于其对患者生活质量的影响较大,给患者带来了沉重负担,因此被定义为一种非传染性疾病。我们的观察性研究旨在通过对意大利人群进行在线的 10 个问题的问卷调查,评估他们对银屑病的实际认知和看法。

方法

2019 年 9 月至 12 月期间,我们对具有代表性的一般人群进行了在线 10 个问题的问卷调查。通过多种方式(如社交媒体网站[脸书、照片墙]或在公共场所[门诊、药店]发送问卷链接)宣传在线调查,以招募具有代表性的一般人群(年龄≥18 岁)作为研究对象。所有结果均由 Google 表单平台以图表形式收集和分析。

结果

共有 151 人参与了调查。结果显示,7.3%(N=11)的一般人群对银屑病一词不熟悉;4.6%(N=7)的人认为银屑病是一种传染病,6%(N=9)的人认为银屑病具有传染性。有趣的是,39.1%(N=59)的参与者从未听说过靶向/生物疗法。我们的研究受到样本量小以及缺乏参与者的性别、年龄和教育程度数据的限制。

结论

一般人群对银屑病的认知仍然不足,这给患者的日常活动和生活质量带来了障碍。需要进行未来的研究来调查这种知识缺陷的细节,并在更大范围内开展新的银屑病宣传活动,以填补这一空白。

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