Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.
Department of Dermatology, Venereology and Allergology, University Medical Center Schleswig-Holstein, Campus Kiel, Kiel, Germany.
J Dtsch Dermatol Ges. 2018 Jun;16(6):703-710. doi: 10.1111/ddg.13539.
Delivery of health care to psoriasis patients plays an important role in the field of dermatology. Following the 2014 WHO resolution and the 2016 WHO global report, there has been an increase in the awareness of psoriasis among the general public. However, the perception of psoriasis by the general population remains unclear. The goal of the present study was to investigate the perception and assessment of psoriasis among the German population.
Representative telephone survey among 2,001 adults using a standardized questionnaire. Analyses with respect to place of residence, age, gender and level of education were conducted in a descriptive manner.
Twenty-nine percent of participants were familiar with the term "Psoriasis"; 86 %, with the German designation "Schuppenflechte". Ninety-three percent considered the disease to be a significant burden for affected individuals; 59 % stated that there were effective drugs available for psoriasis; 9 % considered the disease to be communicable. Ten percent reported that they would not want to live in the same household as an affected individual; 23 % did not want to share the same swimming pool; and 27 % did not want to be in a personal relationship with someone affected. Twelve percent stated to be familiar with the WHO resolution on psoriasis; 6 % with the World Psoriasis Day; and 3 % with the "Bitte berühren" ("Please touch") campaign.
Although a majority of the German population is familiar with the term "Schuppenflechte", there is a significant lack of knowledge about the disease as well as prejudice toward affected individuals. Further measures are required to improve the level of information and decrease stigmatization.
为银屑病患者提供医疗保健在皮肤科领域起着重要作用。继 2014 年世界卫生组织决议和 2016 年全球报告之后，公众对银屑病的认识有所提高。然而，普通民众对银屑病的看法仍不清楚。本研究旨在调查德国民众对银屑病的认知和评估。
采用标准化问卷对 2001 名成年人进行了代表性的电话调查。以居住地、年龄、性别和教育程度为分析对象，进行了描述性分析。
29%的参与者熟悉“银屑病”一词；86%的人熟悉“银屑病”的德文名称“Schuppenflechte”。93%的人认为这种疾病对患者有很大的负担；59%的人表示有有效的药物治疗银屑病；9%的人认为这种疾病具有传染性。10%的人表示他们不愿意与受影响的人住在同一个家庭；23%的人表示不愿意与受影响的人共用游泳池；27%的人表示不愿意与受影响的人建立个人关系。12%的人表示熟悉世界卫生组织关于银屑病的决议；6%的人知道世界银屑病日；3%的人知道“Bitte berühren”（“请触摸”）运动。
尽管大多数德国民众都熟悉“Schuppenflechte”这个词，但他们对这种疾病的了解程度明显不足，对患者也存在偏见。需要进一步采取措施提高信息水平，减少污名化。
