College of Nursing, University of Manitoba, Winnipeg, Manitoba, Canada
Pediatrics and Child Health, University of Manitoba, Winnipeg, Manitoba, Canada.
BMJ Open. 2021 May 4;11(5):e041530. doi: 10.1136/bmjopen-2020-041530.
Despite recognition of the importance of patient engagement in research and knowledge translation, systematic approaches to engagement and co-ideation remain limited. Living labs are collaborative knowledge sharing systems that use multimethod, user-centred approaches that hold potential to catalyse these aims. However, their use in healthcare is limited, and no living lab has been developed in paediatric rehabilitation. In response to this gap and to propel innovative knowledge exchange, we propose a mixed methods study to co-develop a living lab prototype (ie, preliminary infrastructure with opportunity for scale up) in paediatric rehabilitation, with relevance to other healthcare contexts.
An exploratory sequential mixed methods study will be undertaken to determine research and knowledge exchange priorities and to inform the development of the living lab prototype. Stage 1: we will use a multipronged approach to sample 18-21 youth with developmental differences or rehabilitation needs, their youth siblings and parents/guardians from a provincial paediatric rehabilitation centre, to participate in qualitative and arts-based data collection. Data will provide insight into desirable features of the living lab. Stage 2: E-surveys to youth, siblings, parents/guardians and clinicians who receive or provide services at this same centre will expand on priorities and living lab features. Stage 3: integrated analysis will inform the living lab prototype development.
Inductive thematic analysis using interpretive description, integrated analysis of visual data and descriptive and content analysis of e-survey data will be undertaken. Joint displays will facilitate data integration. Priorities will be identified using a modified rank-order method for each key living lab domain.
Institutional ethics and site approval have been granted. A parent advisory group and rehabilitation engineering partners will confer on data and inform the development of the living lab prototype. User engagement with the prototype will occur during an online or in-person event, and findings shared through non-technical research summaries, journal articles and academic presentations.
尽管人们认识到患者参与研究和知识转化的重要性，但系统的参与和共同构思方法仍然有限。生活实验室是一种协作的知识共享系统，它采用多方法、以用户为中心的方法，具有促进这些目标的潜力。然而，它们在医疗保健中的应用有限，而且在儿科康复领域还没有开发出生活实验室。针对这一差距，并推动创新知识交流，我们提出了一项混合方法研究，旨在共同开发儿科康复领域的生活实验室原型（即具有扩展机会的初步基础设施），同时与其他医疗保健环境相关。
我们将进行一项探索性顺序混合方法研究，以确定研究和知识交流的重点，并为生活实验室原型的开发提供信息。第 1 阶段：我们将采用多管齐下的方法，从省级儿科康复中心招募 18-21 名有发育差异或康复需求的青少年及其青少年兄弟姐妹和父母/监护人，参与定性和基于艺术的数据收集。数据将提供有关生活实验室理想特征的见解。第 2 阶段：对在同一中心接受或提供服务的青少年、兄弟姐妹、父母/监护人以及临床医生进行电子调查，以扩展重点和生活实验室的特征。第 3 阶段：综合分析将为生活实验室原型的开发提供信息。
我们将采用解释性描述的归纳主题分析、视觉数据的综合分析以及电子调查数据的描述性和内容分析，进行分析。联合展示将促进数据的整合。每个关键生活实验室领域都将使用一种修改后的等级排序方法来确定优先级。
已经获得了机构伦理和现场批准。家长咨询小组和康复工程合作伙伴将对数据进行协商，并为生活实验室原型的开发提供信息。用户将通过在线或面对面的活动参与原型，通过非技术性的研究摘要、期刊文章和学术报告分享研究结果。
