Beukes Eldré W, Onozuka Joy, Brazell Torryn P, Manchaiah Vinaya
Department of Speech and Hearing Sciences, Lamar University, Beaumont, TX.
Department of Vision and Hearing Sciences, Anglia Ruskin University, Cambridge, United Kingdom.
Am J Audiol. 2021 Jun 14;30(2):385-393. doi: 10.1044/2021_AJA-20-00188. Epub 2021 May 12.
Purpose The COVID-19 pandemic disrupted normal operations of health care services, broad sectors of the economy, and the ability to socialize freely. For those with tinnitus, such changes can be factors in exacerbating tinnitus. The purpose of this study was to determine tinnitus help-seeking behavior, which resources individuals utilized to cope during the pandemic, and what additional support is desired. Method An exploratory cross-sectional study design including 1,522 adults with tinnitus living in North America (Canada and the United States) was used. Data were collected through an online survey distributed by the American Tinnitus Association via e-mail. Free text from open-ended questions was analyzed using the automated content analysis. The responses to the structured questionnaire were analyzed using descriptive and nonparametric statistics. Results Significantly less tinnitus support was sought during the pandemic, and very few respondents utilized tinnitus support networks during the pandemic at the time the survey was conducted. Nonetheless, seeking support during the pandemic was significantly associated with significantly less tinnitus distress. The most frequently utilized resources for coping during the pandemic were contacting family and friends, spending time outdoors or in nature, relaxation, and exercise. Such tools for coping were associated with significantly less tinnitus distress. The support requested and advice provided by participants to health care services had overlap. The main support needs related to managing tinnitus included addressing hearing loss, providing peer support, finding cures, and accessing trained and understanding health care providers to help. The advice for professionals related to tinnitus management included the need for cures, personalized support, addressing hearing loss, targeting the tinnitus percept, and providing more information about the condition. Conclusions These findings provide suggestions on how to better support those with tinnitus at a time when health care is undergoing rapid changes. Findings can be used by stakeholders, clinical practitioners, and tinnitus support services to devise ways to work more effectively together to improve access to patient-driven, suitable, accessible, and evidence-based support. Supplemental Material https://doi.org/10.23641/asha.14558514.
新冠疫情扰乱了医疗服务的正常运转、经济的广泛领域以及自由社交的能力。对于耳鸣患者而言,这些变化可能是加剧耳鸣的因素。本研究的目的是确定耳鸣求助行为、个体在疫情期间用于应对的资源以及期望获得的额外支持。方法:采用探索性横断面研究设计,纳入了1522名居住在北美(加拿大和美国)的成年耳鸣患者。数据通过美国耳鸣协会通过电子邮件分发的在线调查问卷收集。使用自动内容分析法对开放式问题的自由文本进行分析。对结构化问卷的回答采用描述性和非参数统计进行分析。结果:疫情期间寻求耳鸣支持的情况显著减少,在调查进行时,很少有受访者在疫情期间利用耳鸣支持网络。尽管如此,在疫情期间寻求支持与耳鸣困扰显著减少显著相关。疫情期间最常使用的应对资源是联系家人和朋友、在户外或自然中度过时光、放松和锻炼。这些应对工具与耳鸣困扰显著减少相关。参与者向医疗服务机构请求提供的支持与所提供的建议存在重叠。与耳鸣管理相关的主要支持需求包括解决听力损失问题、提供同伴支持、寻找治愈方法以及获得训练有素且善解人意的医疗服务提供者的帮助。与耳鸣管理相关的给专业人员的建议包括需要治愈方法、个性化支持、解决听力损失问题、针对耳鸣感知以及提供更多关于该病症的信息。结论:这些发现为在医疗保健正在迅速变化的时期如何更好地支持耳鸣患者提供了建议。利益相关者、临床从业者和耳鸣支持服务机构可以利用这些发现来设计更有效的合作方式,以改善获得以患者为导向、合适、可及且基于证据的支持的机会。补充材料https://doi.org/10.23641/asha.14558514