Stars Inese, Smane Liene, Pucuka Zanda, Roge Ieva, Pavare Jana
Riga Stradins University, Riga, Latvia.
Children's Clinical University Hospital, Riga, Latvia.
Glob Pediatr Health. 2021 Apr 23;8:2333794X211012394. doi: 10.1177/2333794X211012394. eCollection 2021.
Information on family health-related quality of life (FHRQoL) among families of children with the coronavirus disease 2019 (COVID-19) is limited. This qualitative study explores the impact of pediatric COVID-19 on FHRQoL from the parents' perspective. Semi-structured interviews were conducted with parents (n = 20) whose children had tested positive for the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). Inductive thematic analysis revealed the following 10 themes that represented parents' perception of FHRQoL while taking care of a child with COVID-19: pediatric COVID-19 as a disease with many unknowns; emotional saturation; internal family relationships in the context of "a new experience"; routine household activities and daily regimen while family is in lockdown; plenty of free time; a wide social support network; social stigma associated with COVID-19; different options for work; savings and debts; challenges with family housing and transport availability. Our results show that parents experience multiple effects of pediatric COVID-19 with regard to FHRQoL.
关于2019冠状病毒病（COVID-19）患儿家庭中与家庭健康相关的生活质量（FHRQoL）的信息有限。这项定性研究从家长的角度探讨了儿童COVID-19对FHRQoL的影响。对其孩子严重急性呼吸综合征冠状病毒2（SARS-CoV-2）检测呈阳性的家长（n = 20）进行了半结构化访谈。归纳主题分析揭示了以下10个主题，这些主题代表了家长在照顾COVID-19患儿时对FHRQoL的认知：儿童COVID-19是一种有许多未知因素的疾病；情绪饱和；“新体验”背景下的家庭内部关系；家庭封锁期间的日常家务活动和日常生活安排；大量的空闲时间；广泛的社会支持网络；与COVID-19相关的社会耻辱感；不同的工作选择；储蓄和债务；家庭住房和交通方面的挑战。我们的结果表明，家长在FHRQoL方面经历了儿童COVID-19的多种影响。
