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儿童新冠病毒感染对家庭健康相关生活质量的影响:拉脱维亚的一项定性研究

Impact of Pediatric COVID-19 on Family Health-Related Quality of Life: A Qualitative Study from Latvia.

作者信息

Stars Inese, Smane Liene, Pucuka Zanda, Roge Ieva, Pavare Jana

机构信息

Riga Stradins University, Riga, Latvia.

Children's Clinical University Hospital, Riga, Latvia.

出版信息

Glob Pediatr Health. 2021 Apr 23;8:2333794X211012394. doi: 10.1177/2333794X211012394. eCollection 2021.

Abstract

Information on family health-related quality of life (FHRQoL) among families of children with the coronavirus disease 2019 (COVID-19) is limited. This qualitative study explores the impact of pediatric COVID-19 on FHRQoL from the parents' perspective. Semi-structured interviews were conducted with parents (n = 20) whose children had tested positive for the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). Inductive thematic analysis revealed the following 10 themes that represented parents' perception of FHRQoL while taking care of a child with COVID-19: pediatric COVID-19 as a disease with many unknowns; emotional saturation; internal family relationships in the context of "a new experience"; routine household activities and daily regimen while family is in lockdown; plenty of free time; a wide social support network; social stigma associated with COVID-19; different options for work; savings and debts; challenges with family housing and transport availability. Our results show that parents experience multiple effects of pediatric COVID-19 with regard to FHRQoL.

摘要

关于2019冠状病毒病(COVID-19)患儿家庭中与家庭健康相关的生活质量(FHRQoL)的信息有限。这项定性研究从家长的角度探讨了儿童COVID-19对FHRQoL的影响。对其孩子严重急性呼吸综合征冠状病毒2(SARS-CoV-2)检测呈阳性的家长(n = 20)进行了半结构化访谈。归纳主题分析揭示了以下10个主题,这些主题代表了家长在照顾COVID-19患儿时对FHRQoL的认知:儿童COVID-19是一种有许多未知因素的疾病;情绪饱和;“新体验”背景下的家庭内部关系;家庭封锁期间的日常家务活动和日常生活安排;大量的空闲时间;广泛的社会支持网络;与COVID-19相关的社会耻辱感;不同的工作选择;储蓄和债务;家庭住房和交通方面的挑战。我们的结果表明,家长在FHRQoL方面经历了儿童COVID-19的多种影响。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7a3d/8072840/84650eb88296/10.1177_2333794X211012394-fig1.jpg

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