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Clinical effectiveness of the START (STrAtegies for RelaTives) psychological intervention for family carers and the effects on the cost of care for people with dementia: 6-year follow-up of a randomised controlled trial.START(亲属策略)心理干预对家庭照顾者的临床效果及对痴呆症患者护理成本的影响:一项随机对照试验的6年随访
Br J Psychiatry. 2020 Jan;216(1):35-42. doi: 10.1192/bjp.2019.160.
2
Communication Empowerment Framework: An integrative framework to support effective communication and interaction between carers and people living with dementia.沟通赋权框架:一个综合框架,旨在支持护理人员与痴呆症患者之间的有效沟通和互动。
Dementia (London). 2020 Aug;19(6):1739-1757. doi: 10.1177/1471301218805329. Epub 2018 Oct 28.
3
Communication training interventions for family and professional carers of people living with dementia: a systematic review of effectiveness, acceptability and conceptual basis.沟通培训干预对生活在痴呆症中的人及其家庭和专业护理人员的影响:有效性、可接受性和概念基础的系统评价。
Aging Ment Health. 2018 Jul;22(7):863-880. doi: 10.1080/13607863.2017.1399343. Epub 2017 Nov 10.
4
Factors associated with the quality of life of family carers of people with dementia: A systematic review.与痴呆症患者的家庭照顾者生活质量相关的因素:系统评价。
Alzheimers Dement. 2017 May;13(5):572-581. doi: 10.1016/j.jalz.2016.12.010. Epub 2017 Feb 5.
5
A computational model of self-efficacy's various effects on performance: Moving the debate forward.自我效能感对绩效影响的计算模型:推动辩论向前发展。
J Appl Psychol. 2017 Apr;102(4):599-616. doi: 10.1037/apl0000177. Epub 2016 Dec 19.
6
Measuring Ambivalent Feelings in Dementia Family Caregivers: The Caregiving Ambivalence Scale.测量痴呆症家庭照顾者的矛盾情感:照顾矛盾量表
Gerontologist. 2017 Jun 1;57(3):e37-e46. doi: 10.1093/geront/gnw144.
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Development and Validation of a Self-Report Measure of Mentalizing: The Reflective Functioning Questionnaire.心理化自评量表的编制与验证:反思功能问卷
PLoS One. 2016 Jul 8;11(7):e0158678. doi: 10.1371/journal.pone.0158678. eCollection 2016.
8
Spouses' experience of living with a partner diagnosed with a dementia: a synthesis of the qualitative research.配偶与被诊断患有痴呆症的伴侣共同生活的经历:定性研究的综合分析
Int Psychogeriatr. 2016 Apr;28(4):537-56. doi: 10.1017/S1041610215002239. Epub 2016 Jan 11.
9
Prospective cohort feasibility study of a transdiagnostic group intervention for common mental health problems: The Take Control Course.针对常见心理健康问题的跨诊断团体干预措施的前瞻性队列可行性研究:掌控课程
Psychol Psychother. 2016 Jun;89(2):163-80. doi: 10.1111/papt.12070. Epub 2015 Jul 22.
10
A web-based psychoeducational program for informal caregivers of patients with Alzheimer's disease: a pilot randomized controlled trial.一项针对阿尔茨海默病患者非正式照料者的基于网络的心理教育项目:一项试点随机对照试验。
J Med Internet Res. 2015 May 12;17(5):e117. doi: 10.2196/jmir.3717.

一项关于“赋权对话”沟通技巧课程对痴呆症患者护理者影响的可行性研究。

A feasibility study of the impact of a communication-skills course, 'Empowered Conversations', for care partners of people living with dementia.

机构信息

Institute of Dementia, School of Health and Society, 7046University of Salford, UK; Division of Population Health, Health Services Research and Primary Care, University of Manchester, UK.

Institute of Dementia, School of Health and Society, 13995University of Salford, UK.

出版信息

Dementia (London). 2021 Nov;20(8):2838-2850. doi: 10.1177/14713012211018929. Epub 2021 May 17.

DOI:10.1177/14713012211018929
PMID:33998912
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8671646/
Abstract

OBJECTIVES

To examine the feasibility, acceptability and impact of an experiential course for family care partners of people living with dementia, Empowered Conversations (EC). This study aimed to assess the impact of participation in an EC course on care partner stress levels, communication and mentalization (a form of relational-based empathy).

METHOD

This study uses an uncontrolled pre-post-follow-up design. Follow-up was at 4-months after the initial EC session where baseline data were collected. One hundred and fifty-nine care partners were recruited. EC is a training course that has been designed to improve care partner communication, well-being and relationships. It is based on an integrative framework that targets the specific psychological, relationship and communication needs of carers. This framework informs targeted strategies and interactive exercises that facilitate carers to consider the goals and emotions of those they are caring for, alongside their own goals and emotions, and to use this to maximize good communication.

RESULTS

Stress was significantly reduced across the three time points. Communication significantly improved across time. There were no significant changes in reflective functioning (mentalization).

DISCUSSION

This study provides preliminary evidence that a communication-skills training course for care partners of people living with dementia is an acceptable and feasible intervention and has an impact both post-intervention and at follow-up. These findings require validation in a rigorous, randomized study.

摘要

目的

考察为痴呆症患者的家庭护理者提供体验式课程(赋能对话,简称 EC)的可行性、可接受性和影响。本研究旨在评估参与 EC 课程对护理人员压力水平、沟通和心理化(一种基于关系的同理心形式)的影响。

方法

本研究采用非对照前后随访设计。随访时间为初次 EC 课程结束后的 4 个月,此时收集基线数据。共招募了 159 名护理人员。EC 是一种培训课程,旨在改善护理人员的沟通、幸福感和人际关系。它基于一个综合框架,针对护理人员的特定心理、关系和沟通需求。该框架为有针对性的策略和互动练习提供信息,帮助护理人员考虑他们所照顾的人的目标和情绪,以及他们自己的目标和情绪,并利用这些来实现良好的沟通。

结果

三个时间点的压力均显著降低。沟通随着时间的推移显著改善。反思功能(心理化)没有显著变化。

讨论

本研究初步证明,为痴呆症患者的家庭护理人员提供沟通技巧培训课程是一种可接受且可行的干预措施,无论是在干预后还是在随访中都有影响。这些发现需要在一项严格的随机研究中得到验证。