Aparicio Andrés, Arango Paulina, Espinoza Rosario, Villate Vicente, Tenorio Marcela
Millennium Institute for Caregiving Research, República 217, Santiago, Región Metropolitana, Chile.
Universidad de los Andes, Monseñor Álvaro del Portillo 12455, Las Condes, Región Metropolitana, Chile.
Syst Rev. 2021 Jun 4;10(1):165. doi: 10.1186/s13643-021-01716-3.
People with intellectual disabilities have been historically excluded from decision-making processes. Previous literature indicates that increasing social participation may be an effective way to address this exclusion, but no systematic review of interventions designed to increase social participation of people with intellectual disabilities have been conducted. This study aims to identify and organize the factors associated with interventions that increase the social participation of people with intellectual disabilities and to provide a set of best of practices for future interventions.
METHODS/DESIGN: The databases Web of Science, Scopus, LILACS, and PubMed will be searched for articles from January 2004 onwards; grey literature search will be identified through searching additional databases (such as Google Scholar and EBSCO databases). Randomized controlled trials, nonrandomized controlled trials, and controlled pre-post studies will be included. Noncontrolled pre-post studies will also be included. Observational or qualitative studies will be excluded. The primary outcomes are measures of social participation. Secondary outcomes include measures of well-being, stigma, knowledge about rights, and advocacy processes. Two reviewers will independently screen articles, extract relevant data, and assess the quality of the studies. We will provide a meta-analysis of included studies if possible, or a quantitative narrative synthesis otherwise.
This systematic review will add to our understanding of effective social participation interventions for people with intellectual disability. It will allow us to identify and organize which factors lead to an increase in social participation and help us define a set of best practices to be followed by future interventions.
PROSPERO CRD42020189093.
智障人士在历史上一直被排除在决策过程之外。以往文献表明，增加社会参与可能是解决这种排斥问题的有效途径，但尚未对旨在提高智障人士社会参与度的干预措施进行系统综述。本研究旨在识别和梳理与提高智障人士社会参与度的干预措施相关的因素，并为未来的干预措施提供一套最佳实践方法。
方法/设计：将检索科学引文索引（Web of Science）、Scopus、拉丁美洲及加勒比地区卫生科学数据库（LILACS）和医学期刊数据库（PubMed）中2004年1月起的文章；通过搜索其他数据库（如谷歌学术和EBSCO数据库）来识别灰色文献。将纳入随机对照试验、非随机对照试验和对照前后研究。也将纳入非对照前后研究。排除观察性或定性研究。主要结局是社会参与度的测量指标。次要结局包括幸福感、耻辱感、权利知识和宣传过程的测量指标。两名评审员将独立筛选文章、提取相关数据并评估研究质量。如有可能，我们将对纳入的研究进行荟萃分析，否则将进行定量叙述性综合分析。
本系统综述将增进我们对智障人士有效社会参与干预措施的理解。它将使我们能够识别和梳理哪些因素会导致社会参与度的提高，并帮助我们确定一套未来干预措施应遵循的最佳实践方法。
国际前瞻性系统综述注册库（PROSPERO）CRD42020189093。
