Deutsche Stiftung für chronisch Kranke, Berlin, Germany.
Deutsche Stiftung für chronisch Kranke, Berlin, Germany
BMJ Open. 2021 Jun 16;11(6):e046160. doi: 10.1136/bmjopen-2020-046160.
Heart failure is a growing challenge to healthcare systems worldwide. Technological solutions have the potential to improve the health of patients and help to reduce costs. Acceptability is a prerequisite for the use and a successful implementation of new disruptive technologies. This qualitative study aimed to explore determinants that influence the acceptance of patients and their informal caregivers regarding a patient-oriented digital decision-making solution-a system.
We applied a semistructured design using an interview guide that was based on a theoretical framework influenced by established acceptance theories. The interviews were analysed using a content analysis.
A multicentred study in four European countries.
We interviewed 49 patients and 33 of their informal caregivers. Most of the patients were male (76%) and aged between 60 and 69 years (43%). Informal caregivers were mostly female (85%). The majority of patients (55%) suffered from heart failure with mild symptoms.
Four main categories emerged from the data: and . Participants expressed clear wishes and expectations regarding a , especially the need for reassurance and support in the management of heart failure. They were receptive to changes to the current healthcare processes. However, was identified as an important basis for acceptance and use. Finally, for decision-making errors is a crucial topic in need of attention.
Patients and informal caregivers see clear benefits of digitalisation in healthcare. They perceive that an interactive decision-making system for patients could empower and enable effective self-care. Our results provide important insights for development processes of patient-centred decision-making systems by identifying facilitators and barriers for acceptance. Further research is needed, especially regarding the influence and mitigation of patients and informal caregivers' perceived risks.
心力衰竭是全球医疗体系面临的日益严峻的挑战。技术解决方案有可能改善患者的健康状况并有助于降低成本。可接受性是使用和成功实施新技术的前提。本定性研究旨在探讨影响患者及其非专业照护者对以患者为中心的数字决策解决方案(系统)接受程度的决定因素。
我们采用了半结构式设计,使用了基于受既定接受理论影响的理论框架的访谈指南。使用内容分析法对访谈进行分析。
在四个欧洲国家进行的多中心研究。
我们采访了 49 名患者和 33 名非专业照护者。大多数患者为男性(76%),年龄在 60 至 69 岁之间(43%)。非专业照护者大多为女性(85%)。大多数患者(55%)患有心力衰竭,症状较轻。
从数据中出现了四个主要类别:感知有用性和易用性、感知风险和担忧、感知需求和期望、感知影响和影响因素。参与者对数字医疗解决方案表达了明确的愿望和期望,特别是在管理心力衰竭方面需要得到安慰和支持。他们对改变当前的医疗保健流程持开放态度。然而,系统信任被认为是接受和使用的重要基础。最后,对决策错误的恐惧是一个需要关注的关键问题。
患者和非专业照护者看到了医疗数字化的明显好处。他们认为,为患者提供一个互动式决策系统可以赋予他们权力并实现有效的自我护理。我们的研究结果为以患者为中心的决策系统的开发过程提供了重要的见解,确定了接受度的促进因素和障碍。需要进一步研究,特别是关于患者和非专业照护者感知风险的影响和缓解。