中文：在澳门的中国社会文化背景下，对姑息治疗的了解和对临终关怀的偏好：一项横断面调查研究。
Knowledge of palliative care and preference of end of life care: a cross-sectional survey of residents in the Chinese socio-cultural background of Macao.
机构信息
Kiang Wu Nursing College of Macau, Est. Repouso No. 35, R/C, Macao SAR, China.
出版信息
BMC Palliat Care. 2021 Jun 22;20(1):87. doi: 10.1186/s12904-021-00798-z.
BACKGROUND
Since the establishment of a hospice in the year 2000 and the development of a palliative care ward in 2019, there is no study examining public's knowledge of palliative care, nor preference of end of life care in Macao.
AIM
Targeting Chinese residents of Macao, the current study has 3 goals: i) to understand the level of knowledge of palliative care, ii) to explore the preference of end of life treatments, and iii) to identify the associated factors of the preference of end of life treatments.
METHODS
A cross-sectional questionnaire survey was conducted using a structured questionnaire. The study employed non-probability quota sampling through which Macao residents aged 18 and above were recruited between July and September 2020.
RESULTS
A total of 737 responses were valid. The average correct rate of palliative care knowledge ranged from 40.4% to 85.5%. Pertaining to end of life treatments, 62.0% of the respondents chose comfort care. However, almost half of the respondents agreed that life-sustaining treatments should not be stopped under any circumstances. Respondents who scored higher in palliative care knowledge and those with secondary and tertiary education were associated factors of choosing comfort care rather than life-sustaining treatments. In addition, respondents who agreed that futile life-sustaining treatments should be stopped were also associated with preference for comfort care.
CONCLUSION
The understanding of palliative care amongst Macao residents is inadequate. Despite the public's inclination towards comfort care, it is generally believed that life-sustaining treatments should not be stopped at the end of life. The study results suggest that not only the knowledge of palliative care should be enhanced amongst the general public in Macao, but information about life-sustaining treatments should also be offered to patients and families by healthcare professionals, in aiding end of life treatment decision making.
背景
自 2000 年设立临终关怀院和 2019 年设立姑息治疗病房以来，澳门尚未有研究调查公众对姑息治疗的认知，也未探讨公众对临终关怀的偏好。
目的
针对澳门的中国居民，本研究有 3 个目标：i）了解姑息治疗知识水平，ii）探讨临终治疗偏好，iii）确定临终治疗偏好的相关因素。
方法
本研究采用横断面问卷调查，使用结构化问卷。本研究采用非概率配额抽样，于 2020 年 7 月至 9 月招募年龄在 18 岁及以上的澳门居民。
结果
共收到 737 份有效问卷。姑息治疗知识的平均正确回答率在 40.4%至 85.5%之间。关于临终治疗，62.0%的受访者选择舒适护理。然而，近一半的受访者认为在任何情况下都不应停止维持生命的治疗。姑息治疗知识得分较高的受访者和接受过中等和高等教育的受访者是选择舒适护理而不是维持生命治疗的相关因素。此外，认为无益的维持生命治疗应停止的受访者也与选择舒适护理有关。
结论
澳门居民对姑息治疗的理解不足。尽管公众倾向于舒适护理，但普遍认为临终时不应停止维持生命的治疗。研究结果表明，不仅应在澳门公众中加强姑息治疗知识的普及，医疗保健专业人员还应为患者和家属提供关于维持生命治疗的信息，以帮助做出临终治疗决策。
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