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健康信息技术的整合与以家庭为中心的痴呆症护理中人格的提升:干预试验。

Integration of Health Information Technology and Promotion of Personhood in Family-Centered Dementia Care: Intervention Trial.

出版信息

Res Gerontol Nurs. 2021 Sep-Oct;14(5):225-234. doi: 10.3928/19404921-20210825-02. Epub 2021 Sep 1.

DOI:10.3928/19404921-20210825-02
PMID:34542347
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9012346/
Abstract

UNLABELLED

Alzheimer's disease and related dementias (ADRD) often result in communication deficits that can lead to negative health outcomes as well as complications for caregiving and clinical care. Although augmentative and alternative communication (AAC) devices have demonstrated efficacy in assisting persons living with dementia (PLWD) in communicating, few devices offer customization for the person's care preferences (e.g., clothing, food, activities) or are designed for integration into clinical care and caregiving. To address this issue, our research team is developing a novel electronic AAC prototype with a touchscreen to promote communication and personhood for PLWD. The current article describes the development of this technology and uses the Standard Protocol Items: Recommendations for Interventional Trials (SPIRIT) 2013 Statement to describe the clinical trial that is planned to test its efficacy.

TARGETS

PLWD and their care partners.

INTERVENTION DESCRIPTION

Use of AAC Plus to promote communication and personhood for PLWD.

MECHANISMS OF ACTION

AAC Plus will provide PLWD and care partners a way to communicate PLWD's daily preferences and provide clinical data for health care providers.

OUTCOMES

Determine whether enhanced communication of daily preferences of PLWD will improve quality of life of PLWD and their care partners.

TRIAL REGISTRATION

ClinicalTrials.gov Identifier: NCT04571502 (Date of registration October 1, 2020). [(5), 225-234.].

摘要

未加标签

阿尔茨海默病和相关痴呆症(ADRD)常导致沟通障碍,从而导致健康状况恶化,以及对护理和临床护理的并发症。尽管辅助和替代沟通(AAC)设备已被证明在帮助痴呆症患者(PLWD)进行沟通方面有效,但很少有设备提供针对个人护理偏好的定制(例如,服装、食物、活动),或者设计用于整合到临床护理和护理中。为了解决这个问题,我们的研究团队正在开发一种具有触摸屏的新型电子 AAC 原型,以促进 PLWD 的沟通和个性。本文介绍了这项技术的发展,并使用标准干预试验建议报告(SPIRIT)2013 声明来描述计划测试其疗效的临床试验。

目标

PLWD 和他们的护理伙伴。

干预描述

使用 AAC Plus 促进 PLWD 的沟通和个性。

作用机制

AAC Plus 将为 PLWD 和护理伙伴提供一种沟通 PLWD 日常偏好的方式,并为医疗保健提供者提供临床数据。

结果

确定 PLWD 日常偏好的增强沟通是否会改善 PLWD 和他们的护理伙伴的生活质量。

试验注册

ClinicalTrials.gov 标识符:NCT04571502(注册日期 2020 年 10 月 1 日)。

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本文引用的文献

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Effects of Visual Aids for End-of-Life Care on Decisional Capacity of People With Dementia.临终关怀中视觉辅助工具对痴呆症患者决策能力的影响。
Am J Speech Lang Pathol. 2020 Feb 7;29(1):185-200. doi: 10.1044/2019_AJSLP-19-0028. Epub 2019 Dec 23.
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Speech and language therapy approaches to managing primary progressive aphasia.管理原发性进行性失语症的言语和语言治疗方法。
Pract Neurol. 2020 Apr;20(2):154-161. doi: 10.1136/practneurol-2018-001921. Epub 2019 Jul 29.
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Review of AAC interventions in persons with dementia.痴呆症患者的 AAC 干预措施回顾。
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J Rehabil Assist Technol Eng. 2017 Oct 31;4:2055668317733382. doi: 10.1177/2055668317733382. eCollection 2017 Jan-Dec.
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A longitudinal study of speech production in primary progressive aphasia and behavioral variant frontotemporal dementia.原发性进行性失语症和行为变异额颞叶痴呆患者言语产生的纵向研究。
Brain Lang. 2019 Jul;194:46-57. doi: 10.1016/j.bandl.2019.04.006. Epub 2019 May 7.
6
The Potential of Information Technology to Navigate Caregiving Systems: Perspectives from Dementia Caregivers.信息技术在引导照护系统方面的潜力:来自痴呆症照护者的观点。
J Gerontol Soc Work. 2019 May-Jun;62(4):432-450. doi: 10.1080/01634372.2018.1546786. Epub 2018 Nov 13.
7
CareHeroes Web and Android™ Apps for Dementia Caregivers: A Feasibility Study.适用于痴呆症护理人员的CareHeroes网络应用程序和安卓应用程序:一项可行性研究。
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Community REACH: An Implementation of an Evidence-Based Caregiver Program.社区 REACH:一个基于证据的照护者项目的实施。
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Targeting Behavioral Symptoms and Functional Decline in Dementia: A Randomized Clinical Trial.针对痴呆症的行为症状和功能下降:一项随机临床试验。
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