Internet Rule of Law Institute, East China University of Political Science and Law, Shanghai, China.
Humanities and Law School, Northeast Forest University, Harbin, Heilongjiang, China.
Biomed Res Int. 2021 Oct 7;2021:6967166. doi: 10.1155/2021/6967166. eCollection 2021.
Health big data has already been the most important big data for its serious privacy disclosure concerns and huge potential value of secondary use. Measurements must be taken to balance and compromise both the two serious challenges. One holistic solution or strategy is regarded as the preferred direction, by which the risk of reidentification from records should be kept as low as possible and data be shared with the principle of minimum necessary. In this article, we present a comprehensive review about privacy protection of health data from four aspects: health data, related regulations, three strategies for data sharing, and three types of methods with progressive levels. Finally, we summarize this review and identify future research directions.
健康大数据因其严重的隐私泄露问题和巨大的二次利用潜在价值,已经成为最重要的大数据。必须采取措施来平衡和折衷这两个严重挑战。一个整体的解决方案或策略被认为是首选方向,通过该方向应尽可能降低从记录中重新识别的风险,并以最小必要的原则共享数据。在本文中,我们从健康数据、相关法规、三种数据共享策略以及三种具有渐进性水平的方法四个方面对健康数据的隐私保护进行了全面回顾。最后,我们总结了这次回顾,并确定了未来的研究方向。