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胎儿外科学:承认胎儿患者身份是否会威胁孕妇自主权?

Maternal-Fetal Surgery: Does Recognising Fetal Patienthood Pose a Threat to Pregnant Women's Autonomy?

机构信息

Centre for Social Ethics and Policy, The University of Manchester, Williamson Building, Oxford Road, Manchester, M13 9PL, England.

出版信息

Health Care Anal. 2021 Dec;29(4):301-318. doi: 10.1007/s10728-021-00440-2. Epub 2021 Oct 21.

Abstract

Maternal-fetal surgery (MFS) encompasses a range of innovative procedures aiming to treat fetal illnesses and anomalies during pregnancy. Their development and gradual introduction into healthcare raise important ethical issues concerning respect for pregnant women's bodily integrity and autonomy. This paper asks what kind of ethical framework should be employed to best regulate the practice of MFS without eroding the hard-won rights of pregnant women. I examine some existing models conceptualising the relationship between a pregnant woman and the fetus to determine what kind of framework is the most adequate for MFS, and conclude that an ecosystem or maternal-fetal dyad model is best suited for upholding women's autonomy. However, I suggest that an appropriate framework needs to incorporate some notion of fetal patienthood, albeit a very limited one, in order to be consistent with the views of healthcare providers and their pregnant patients. I argue that such an ethical framework is both theoretically sound and fundamentally respectful of women's autonomy, and is thus best suited to protect women from coercion or undue paternalism when deciding whether to undergo MFS.

摘要

母胎医学手术(MFS)涵盖了一系列创新的手术程序,旨在治疗妊娠期间胎儿的疾病和异常。这些手术的发展和逐步引入医疗保健领域引发了一些重要的伦理问题,涉及到对孕妇身体完整性和自主权的尊重。本文探讨了应该采用什么样的伦理框架来最好地规范 MFS 的实践,而不会侵蚀孕妇来之不易的权利。我考察了一些现有的概念化孕妇与胎儿之间关系的模型,以确定哪种框架最适合 MFS,并得出结论,生态系统或母胎对子模型最适合维护妇女的自主权。然而,我认为,一个适当的框架需要纳入一些胎儿患者的概念,尽管是非常有限的,以与医疗保健提供者及其孕妇患者的观点保持一致。我认为,这种伦理框架在理论上是合理的,从根本上尊重妇女的自主权,因此最适合保护妇女在决定是否接受 MFS 时免受胁迫或不当的家长主义。

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本文引用的文献

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The Application of Clinical Ultrasound in Fetal Therapy.临床超声在胎儿治疗中的应用
J Med Ultrasound. 2020 Dec 15;29(1):1-2. doi: 10.4103/JMU.JMU_134_20. eCollection 2021 Jan-Mar.
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Reviewing the womb.检查子宫。
J Med Ethics. 2020 Jul 29;47(12):820-9. doi: 10.1136/medethics-2020-106160.
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Fetal Surgery.胎儿外科手术
Pediatr Clin North Am. 2019 Apr;66(2):295-308. doi: 10.1016/j.pcl.2018.12.001.

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