Viftrup Dorte Toudal, Nissen Ricko, Søndergaard Jens, Hvidt Niels Christian
Research Unit of General Practice, Department of Public Health, University of Southern Denmark, 5000 Odense C, Denmark.
Research Unit of General Practice, Department of Public Health, University of Southern Denmark, Odense C, Denmark.
Palliat Care Soc Pract. 2021 Oct 22;15:26323524211050646. doi: 10.1177/26323524211050646. eCollection 2021.
In Denmark and internationally, there has been an increased focus on strengthening palliative care by enhancing spiritual care. Dying patients, however, do not experience their spiritual needs being adequately met.
Through an action research study design with four consecutive stages, namely, observation in practice, reflection-on-praxis, action-in-praxis, and evaluation of the action research process involving patients and hospice staff from two hospices in Denmark, two research questions were explored: (1) How do patients and staff perceive, feel, live, practice, and understand spiritual care at hospice? and (2) How can spiritual care be improved in hospice practice? The data material presented comprised 12 individual interviews with patients and nine focus group interviews with the staff.
We found four aspects of spiritual care through which patients and staff seemed to perceive, feel, live, practice, and understand spiritual care at hospice, and from where spiritual care may be improved in hospice practice. These aspects constituted four themes: (1) relational, (2) individualistic, (3) embodied, and (4) verbal aspects of spiritual care.
Staff realized immanent limitations of individual aspects of spiritual care but learned to trust that their relational abilities could improve spiritual care. Embodied aspects seemed to open for verbal aspects of spiritual care, but staff were reluctant to initiative verbal dialogue. They would bodily sense values about preserving patients' boundaries in ways that seemed to hinder verbal aspects of spiritual care. During action-in-praxis, however, staff realized that they might have to initiate spiritual conversation in order to care for patients' spiritual needs.
在丹麦乃至国际上,人们越来越关注通过加强精神关怀来强化姑息治疗。然而,临终患者并未感到他们的精神需求得到了充分满足。
通过一项行动研究设计,该设计包括四个连续阶段,即实践观察、实践反思、实践行动以及对涉及丹麦两家临终关怀机构的患者和工作人员的行动研究过程进行评估,探讨了两个研究问题:(1)患者和工作人员如何在临终关怀机构中感知、感受、体验、实践和理解精神关怀?(2)如何在临终关怀实践中改善精神关怀?所呈现的数据材料包括对患者的12次个人访谈和对工作人员的9次焦点小组访谈。
我们发现了精神关怀的四个方面,患者和工作人员似乎通过这些方面在临终关怀机构中感知、感受、体验、实践和理解精神关怀,并且可以从这些方面在临终关怀实践中改善精神关怀。这些方面构成了四个主题:(1)关系性、(2)个人主义、(3)具身性、(4)精神关怀的言语方面。
工作人员意识到精神关怀各个方面存在内在局限性,但学会相信他们的关系能力可以改善精神关怀。具身性方面似乎为精神关怀的言语方面提供了契机,但工作人员不愿主动发起言语对话。他们会以似乎阻碍精神关怀言语方面的方式从身体上感知维护患者界限的价值观。然而,在实践行动过程中,工作人员意识到他们可能不得不发起精神对话以满足患者的精神需求。