• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利：CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法，用中文像聊天一样搜索，搜遍4000万医学文献。AI智能推荐，让科研检索更轻松。

立即免费搜索

文件翻译

保留排版，准确专业，支持PDF/Word/PPT等文件格式，支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述，25分钟生成高质量综述，智能提取关键信息，辅助科研写作。

立即免费体验

Data Sharing and Global Public Health: Defining What We Mean by Data.

作者信息

Schwalbe Nina, Wahl Brian, Song Jingyi, Lehtimaki Susanna

机构信息

Heilbrunn Department of Population and Family Health, Columbia Mailman School of Public Health, New York, NY, United States.

Spark Street Advisors, New York, NY, United States.

出版信息

Front Digit Health. 2020 Dec 14;2:612339. doi: 10.3389/fdgth.2020.612339. eCollection 2020.

DOI:10.3389/fdgth.2020.612339
PMID:34713073
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8521885/
Abstract
摘要

相似文献

1
Data Sharing and Global Public Health: Defining What We Mean by Data.数据共享与全球公共卫生：界定我们所说的数据的含义
Front Digit Health. 2020 Dec 14;2:612339. doi: 10.3389/fdgth.2020.612339. eCollection 2020.
2
Genomic databases as global public goods?基因组数据库可视为全球公共产品？
Res Publica. 2004;10(2):123-34. doi: 10.1023/b:resp.0000034637.15364.11.
3
A systematic review of barriers to data sharing in public health.一项关于公共卫生领域数据共享障碍的系统综述。
BMC Public Health. 2014 Nov 5;14:1144. doi: 10.1186/1471-2458-14-1144.
4
The Public Goods Hypothesis for the evolution of life on Earth.地球上生命演化的公共物品假说。
Biol Direct. 2011 Aug 23;6:41. doi: 10.1186/1745-6150-6-41.
5
Global public goods for health: weaknesses and opportunities in the global health system.全球卫生公共产品：全球卫生系统的弱点与机遇
Health Econ Policy Law. 2017 Apr;12(2):195-205. doi: 10.1017/S1744133116000451.
6
Clinical Trial Data as Public Goods: Fair Trade and the Virtual Knowledge Bank as a Solution to the Free Rider Problem - A Framework for the Promotion of Innovation by Facilitation of Clinical Trial Data Sharing among Biopharmaceutical Companies in the Era of Omics and Big Data.作为公共物品的临床试验数据：公平交易与虚拟知识库作为解决搭便车问题的方案——在组学和大数据时代通过促进生物制药公司之间的临床试验数据共享来推动创新的框架
Public Health Genomics. 2016;19(4):211-9. doi: 10.1159/000446101. Epub 2016 Jun 1.
7
Viewing benefit sharing in global health research through the lens of Aristotelian justice.从亚里士多德式正义的视角审视全球健康研究中的利益分享。
J Med Ethics. 2017 Jun;43(6):417-421. doi: 10.1136/medethics-2015-102858. Epub 2016 Oct 18.
8
A Global Public Goods Approach to the Health of Migrants.一种关于移民健康的全球公共产品方法。
Public Health Ethics. 2015 Jul;8(2):121-129. doi: 10.1093/phe/phv013.
9
Sharing health data: good intentions are not enough.共享健康数据：仅有良好意愿是不够的。
Bull World Health Organ. 2010 Jun;88(6):462-6. doi: 10.2471/BLT.09.074393.
10
Beyond Our Borders? Public Resistance to Global Genomic Data Sharing.超越国界？公众对全球基因组数据共享的抵制。
PLoS Biol. 2016 Nov 2;14(11):e2000206. doi: 10.1371/journal.pbio.2000206. eCollection 2016 Nov.

引用本文的文献

1
The open sharing operation mechanism of health data in the digital healthcare era: A study based on grounded theory and interpretative structural modeling method.数字医疗时代健康数据的开放共享运行机制：基于扎根理论和解释结构模型法的研究
Digit Health. 2025 Jun 25;11:20552076251353694. doi: 10.1177/20552076251353694. eCollection 2025 Jan-Dec.
2
Social Determinants of Health in Digital Health Policies: an International Environmental Scan.数字健康政策中的健康社会决定因素：一项国际环境扫描
Yearb Med Inform. 2024 Aug;33(1):283-291. doi: 10.1055/s-0044-1800759. Epub 2025 Apr 8.
3
How do we measure the costs, benefits, and harms of sharing data from biomedical studies? A protocol for a scoping review.我们如何衡量生物医学研究数据共享的成本、收益和危害？一项范围综述方案。
Open Res Eur. 2025 Jan 14;3:151. doi: 10.12688/openreseurope.16063.2. eCollection 2023.
4
Diagnostics and Therapy for Malignant Tumors.恶性肿瘤的诊断与治疗
Biomedicines. 2024 Nov 21;12(12):2659. doi: 10.3390/biomedicines12122659.
5
Barriers impeding research data sharing on chronic disease prevention among the older adults in low-and middle-income countries: a systematic review.低收入和中等收入国家老年人慢性病预防研究数据共享的障碍：一项系统综述
Front Public Health. 2024 Nov 29;12:1437543. doi: 10.3389/fpubh.2024.1437543. eCollection 2024.
6
Data sharing considerations and practice among health researchers in Africa: A scoping review.非洲卫生研究人员的数据共享考量与实践：一项范围综述
Digit Health. 2024 Oct 29;10:20552076241290955. doi: 10.1177/20552076241290955. eCollection 2024 Jan-Dec.
7
Biobanking, digital health and privacy: the choices of 1410 volunteers and neurological patients regarding limitations on use of data and biological samples, return of results and sharing.生物库、数字健康和隐私：1410 名志愿者和神经科患者对数据和生物样本使用限制、结果返还和共享的选择。
BMC Med Ethics. 2024 Sep 27;25(1):100. doi: 10.1186/s12910-024-01102-3.
8
Beyond "business as usual": lessons from FIFA for fair benefit-sharing in global health.超越“照常营业”：国际足联在全球健康领域公平利益分享方面的经验教训。
Health Aff Sch. 2024 May 15;2(7):qxae068. doi: 10.1093/haschl/qxae068. eCollection 2024 Jul.
9
Now Is the Time to Strengthen Government-Academic Data Infrastructures to Jump-Start Future Public Health Crisis Response.现在是加强政府-学术数据基础设施以启动未来公共卫生危机应对的时候了。
JMIR Public Health Surveill. 2024 Apr 24;10:e51880. doi: 10.2196/51880.
10
Health data sharing attitudes towards primary and secondary use of data: a systematic review.对健康数据初次使用和二次使用的共享态度：一项系统综述
EClinicalMedicine. 2024 Mar 18;71:102551. doi: 10.1016/j.eclinm.2024.102551. eCollection 2024 May.

本文引用的文献

1
The State of Data in Healthcare: Path Towards Standardization.医疗保健领域的数据现状：迈向标准化之路
J Healthc Inform Res. 2018 May 22;2(3):248-271. doi: 10.1007/s41666-018-0019-8. eCollection 2018 Sep.
2
COVID-19, digital privacy, and the social limits on data-focused public health responses.2019冠状病毒病、数字隐私以及以数据为重点的公共卫生应对措施的社会限制
Int J Inf Manage. 2020 Dec;55:102181. doi: 10.1016/j.ijinfomgt.2020.102181. Epub 2020 Jul 1.
3
Regulatory, safety, and privacy concerns of home monitoring technologies during COVID-19.在 COVID-19 期间家庭监测技术的监管、安全和隐私问题。
Nat Med. 2020 Aug;26(8):1176-1182. doi: 10.1038/s41591-020-0994-1. Epub 2020 Aug 7.
4
Inherent privacy limitations of decentralized contact tracing apps.去中心化接触者追踪应用程序固有的隐私限制。
J Am Med Inform Assoc. 2021 Jan 15;28(1):193-195. doi: 10.1093/jamia/ocaa153.
5
Ten recommendations for supporting open pathogen genomic analysis in public health.支持公共卫生领域开放病原体基因组分析的十项建议。
Nat Med. 2020 Jun;26(6):832-841. doi: 10.1038/s41591-020-0935-z. Epub 2020 Jun 11.
6
Artificial intelligence and the future of global health.人工智能与全球健康的未来。
Lancet. 2020 May 16;395(10236):1579-1586. doi: 10.1016/S0140-6736(20)30226-9.
7
Data sharing for novel coronavirus (COVID-19).新型冠状病毒（COVID-19）的数据共享。
Bull World Health Organ. 2020 Mar 1;98(3):150. doi: 10.2471/BLT.20.251561.
8
Open access epidemiological data from the COVID-19 outbreak.来自新冠疫情的开放获取流行病学数据。
Lancet Infect Dis. 2020 May;20(5):534. doi: 10.1016/S1473-3099(20)30119-5. Epub 2020 Feb 19.
9
A new coronavirus associated with human respiratory disease in China.一种在中国与人类呼吸道疾病相关的新型冠状病毒。
Nature. 2020 Mar;579(7798):265-269. doi: 10.1038/s41586-020-2008-3. Epub 2020 Feb 3.
10
Financing Global Common Goods for Health: When the World is a Country.为全球卫生共同利益提供资金：当世界成为一个国家。
Health Syst Reform. 2019;5(4):334-349. doi: 10.1080/23288604.2019.1663118.