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针对合并晚期慢性心肺疾病患者的居家锻炼计划:探索性研究。

Home-Based Exercise Program for Patients With Combined Advanced Chronic Cardiac and Pulmonary Diseases: Exploratory Study.

作者信息

Herkert Cyrille, Graat-Verboom Lidwien, Gilsing-Fernhout Judith, Schols Manon, Kemps Hareld Marijn Clemens

机构信息

Department of Cardiology, Máxima Medical Center, Eindhoven, Netherlands.

Department of Pulmonology, Máxima Medical Center, Eindhoven, Netherlands.

出版信息

JMIR Form Res. 2021 Nov 9;5(11):e28634. doi: 10.2196/28634.

Abstract

BACKGROUND

As chronic cardiac and pulmonary diseases often coexist, there is a need for combined physical home-based rehabilitation programs, specifically addressing older patients with advanced disease stages.

OBJECTIVE

The primary aim of this study is to evaluate the completion and adherence rates of an 8-week, home-based exercise program for patients with advanced cardiopulmonary disease. The secondary end points include patient satisfaction; adverse events; and program efficacy in terms of change in functional capacity, level of dyspnea, and health-related quality of life.

METHODS

The participants received a goal-oriented, home-based exercise program, and they used a wrist-worn activity tracker to record their exercise sessions. Activity tracker data were made visible on a digital platform, which was also equipped with several other features such as short instruction videos on how to perform specific exercises. The participants received weekly coaching by a physiotherapist and an occupational therapist through video communication.

RESULTS

In all, 10 patients with advanced combined cardiopulmonary disease participated (median age 71, IQR 63-75 years), and 50% (5/10) were men. Of the 10 participants, 9 (90%) completed the 8-week program. Median adherence to the exercise prescription was 75% (IQR 37%-88%), but it declined significantly when the program was divided into 2-week periods (first 2 weeks: 86%, IQR 51%-100%, and final 2 weeks: 57%, IQR 8%-75%; P=.03). The participants were highly satisfied with the program (Client Satisfaction Questionnaire: median score 29, IQR 26-32, and Purpose-Designed Questionnaire: median score 103, IQR 92-108); however, of the 9 participants, 4 (44%) experienced technical issues. The Patient-Specific Complaints Instrument scores declined, indicating functional improvement (from median 7.5, IQR 6.1-8.9, to median 5.7, IQR 3.8-6.7; P=.01). Other program efficacy metrics showed a trend toward improvement.

CONCLUSIONS

Home-based cardiopulmonary telerehabilitation for patients with severe combined cardiopulmonary disease is feasible in terms of high completion and satisfaction rates. Nevertheless, a decrease in adherence during the program was observed, and some of the participants reported difficulties with the technology, indicating the importance of the integration of behavior change techniques, using appropriate technology.

TRIAL REGISTRATION

Netherlands Trial Register NL9182; https://www.trialregister.nl/trial/9182.

摘要

背景

由于慢性心肺疾病常常共存,因此需要有结合居家的综合康复项目,尤其针对疾病晚期的老年患者。

目的

本研究的主要目的是评估一项为期8周的针对晚期心肺疾病患者的居家锻炼项目的完成率和依从率。次要终点包括患者满意度、不良事件,以及在功能能力变化、呼吸困难程度和健康相关生活质量方面的项目疗效。

方法

参与者接受了一个以目标为导向的居家锻炼项目,并使用腕戴式活动追踪器记录他们的锻炼情况。活动追踪器的数据在一个数字平台上可见,该平台还具备其他一些功能,如关于如何进行特定锻炼的简短指导视频。参与者每周通过视频通信接受物理治疗师和职业治疗师的指导。

结果

共有10名晚期心肺合并疾病患者参与(中位年龄71岁,四分位间距63 - 75岁),其中50%(5/10)为男性。10名参与者中,9名(90%)完成了为期8周的项目。锻炼处方的中位依从率为75%(四分位间距37% - 88%),但当项目分为两周时间段时,依从率显著下降(前两周:86%,四分位间距51% - 100%,最后两周:57%,四分位间距8% - 75%;P = 0.03)。参与者对该项目高度满意(客户满意度问卷:中位得分29,四分位间距26 - 32,以及专门设计的问卷:中位得分103,四分位间距92 - 108);然而,9名参与者中有4名(44%)遇到了技术问题。患者特定投诉工具评分下降,表明功能有所改善(从中位7.5分,四分位间距6.1 - 8.9分,降至中位5.7分,四分位间距3.8 - 6.7分;P = 0.01)。其他项目疗效指标显示有改善趋势。

结论

对于重度心肺合并疾病患者,居家心肺远程康复在高完成率和满意度方面是可行的。然而,在项目期间观察到依从性有所下降,并且一些参与者报告了技术方面的困难,这表明使用适当技术整合行为改变技术的重要性。

试验注册

荷兰试验注册编号NL9182;https://www.trialregister.nl/trial/9182

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3dca/8663616/218a76653c91/formative_v5i11e28634_fig1.jpg

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