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教育干预对具有土耳其或摩洛哥移民背景的痴呆症患者家庭照顾者健康相关生活质量的影响:一项集群随机对照试验的见解。

Effects of an educational intervention on health-related quality of life among family caregivers of people with dementia with a Turkish or Moroccan immigrant background: Insights from a cluster randomised controlled trial.

机构信息

Nivel, Netherlands Institute of Health Services Research, P.O. Box 1568, 3500 BN Utrecht, Netherlands.

Alzheimer Nederland, Amersfoort, Netherlands.

出版信息

Patient Educ Couns. 2021 May;104(5):1168-1175. doi: 10.1016/j.pec.2020.10.029. Epub 2020 Oct 22.

Abstract

OBJECTIVE

Gaining understanding of the health-related quality of life (HRQL) of family caregivers of people with dementia with Turkish or Moroccan immigrant backgrounds and to examine whether an educational peer group intervention can improve HRQL.

METHODS

Understanding of HRQL and associated variables was obtained by multiple linear regression analyses. The effects of the intervention on HRQL were assessed in multilevel analyses using data collected before the start (baseline), directly after the intervention (one to two weeks after baseline) and three months after the start of the intervention. The intervention (two interactive group sessions) entailed providing information about dementia and care/support options.

RESULTS

At baseline (n = 319), HRQL was moderately and significantly associated with migration background, gender, self-perceived pressure from informal care and the formal and informal support received (p < .05). The intervention had a small effect on emotional wellbeing directly after the intervention (p < .05) and on perceived general health status three months after (p < .05).

CONCLUSION

Culturally sensitive peer group education on dementia and care/support options can to some extent enhance HRQL among family caregivers in the short term.

PRACTICE IMPLICATIONS

The intervention as described in this study is recommended for supporting family caregivers of people with dementia with Turkish or Moroccan backgrounds.

摘要

目的

了解具有土耳其或摩洛哥移民背景的痴呆症患者家属的健康相关生活质量(HRQL),并检验教育同伴小组干预是否能改善 HRQL。

方法

通过多元线性回归分析获得对 HRQL 及相关变量的理解。使用在干预开始前(基线)、直接在干预后(基线后一到两周)和干预开始后三个月收集的数据,采用多层次分析评估干预对 HRQL 的影响。干预(两次互动小组会议)包括提供有关痴呆症和护理/支持选择的信息。

结果

在基线时(n=319),HRQL 与移民背景、性别、自我感知的非正式护理压力以及获得的正式和非正式支持中度且显著相关(p<.05)。干预对干预后直接的情绪健康状况有较小的影响(p<.05),对三个月后的整体健康状况感知也有影响(p<.05)。

结论

针对痴呆症和护理/支持选择的文化敏感的同伴小组教育在短期内可在一定程度上提高痴呆症患者家属的 HRQL。

实践意义

建议对具有土耳其或摩洛哥背景的痴呆症患者家属实施本研究中描述的干预措施。

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