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Reporting on patient and public involvement (PPI) in research publications: using the GRIPP2 checklists with lay co-researchers.研究出版物中患者及公众参与(PPI)的报告:与非专业共同研究者使用GRIPP2清单
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2
Citizen Consultation on Problematic Usage of the Internet: Ethical Considerations and Empirical Insights From Six Countries.公民对互联网使用问题的咨询:六个国家的伦理考虑和实证见解。
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3
PRISMA 2020 explanation and elaboration: updated guidance and exemplars for reporting systematic reviews.PRISMA 2020 解释和说明:系统评价报告的更新指南和范例。
BMJ. 2021 Mar 29;372:n160. doi: 10.1136/bmj.n160.
4
Patient and Public Involvement of young people with a chronic condition in projects in health and social care: A scoping review.患者和公众参与慢性病青少年在卫生和社会保健项目中的作用:范围综述。
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5
Patient and public involvement: Two sides of the same coin or different coins altogether?患者和公众参与:同一枚硬币的两面还是完全不同的硬币?
Bioethics. 2019 Jul;33(6):708-715. doi: 10.1111/bioe.12584. Epub 2019 Apr 8.
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Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis.患者和公众参与对临床试验入组和保留的影响:系统评价和荟萃分析。
BMJ. 2018 Nov 28;363:k4738. doi: 10.1136/bmj.k4738.
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Youth Speak: increasing engagement of young people in mental health research.青年之声:提高年轻人对心理健康研究的参与度。
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患者及公众参与青少年心理健康研究:实践与影响的系统评价方案

Patient and Public Involvement in Youth Mental Health Research: Protocol for a Systematic Review of Practices and Impact.

作者信息

Sales Célia M D, Martins Filipa, Alves Marisa M, Carletto Sara, Conejo-Cerón Sonia, da Silva Luis Costa, Čuš Anja, Edridge Chloe, Ferreira Nuno, Hancheva Camellia, Lima Esperanca M A, Liverpool Shaun, Midgley Nick, Moltrecht Bettina, Moreno-Peral Patricia, Morgan Nicholas, Mortimer Rose, Mota Catarina Pinheiro, Pietrabissa Giada, Sousa Sonia, Ulberg Randi, Edbrooke-Childs Julian

机构信息

Faculty of Psychology and Education Science, University of Porto, Porto, Portugal.

Center for Psychology, University of Porto (CPUP), Porto, Portugal.

出版信息

Front Psychol. 2021 Nov 5;12:703624. doi: 10.3389/fpsyg.2021.703624. eCollection 2021.

DOI:10.3389/fpsyg.2021.703624
PMID:34803797
原文链接:
https://pmc.ncbi.nlm.nih.gov/articles/PMC8603822/
Abstract

Various health settings have advocated for involving patients and members of the public (PPI) in research as a means to increase quality and relevance of the produced knowledge. However, youth PPI has been an understudied area. This protocol paper describes a new project that aims to summarize what is known about PPI with young people in mental health research. In line with the Preferred Reporting Items for Systematic reviews and Meta-Analyses Statement guidelines we will identify and appraise suitable articles and extract and synthesize relevant information including at least two reviewers at each stage of the process. Results will be presented in two systematic reviews that will describe (a) how youth PPI has been conducted (Review1) and (b) what impact youth PPI had on the subsequent research and on stakeholders (Review2). To our knowledge, this is the first set of reviews that uses a critical appraisal tool, which is co-developed with children and young people. Findings from this project will provide valuable insights and set out the key steps to adopting adequate PPI methods when involving children and young people in mental health research.

摘要

各种健康领域都主张让患者和公众参与研究,以此作为提高所产生知识的质量和相关性的一种手段。然而,青少年参与公众参与(PPI)这一领域一直未得到充分研究。本方案文件描述了一个新项目,旨在总结心理健康研究中有关青少年参与公众参与的已知情况。根据系统评价和Meta分析声明指南的首选报告项目,我们将识别和评估合适的文章,并提取和综合相关信息,在过程的每个阶段至少有两名评审人员参与。结果将在两项系统评价中呈现,这两项评价将描述:(a)青少年参与公众参与是如何进行的(综述1),以及(b)青少年参与公众参与对后续研究和利益相关者产生了什么影响(综述2)。据我们所知,这是第一组使用与儿童和青少年共同开发的批判性评估工具的综述。该项目的研究结果将提供有价值的见解,并列出在让儿童和青少年参与心理健康研究时采用适当的公众参与方法的关键步骤。