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疾病接纳度作为中度银屑病患者生活质量的衡量指标

Illness Acceptance as the Measure of the Quality of Life in Moderate Psoriasis.

作者信息

Jankowiak Barbara, Kowalewska Beata, Krajewska-Kułak Elżbieta, Milewski Rafał, Turosz Maria Anna

机构信息

Department of Integrated Medical Care, Medical University of Bialystok, Bialystok, Poland.

Faculty of Health Sciences Medical University of Bialystok, Bialystok, Poland.

出版信息

Clin Cosmet Investig Dermatol. 2021 Aug 28;14:1139-1147. doi: 10.2147/CCID.S318603. eCollection 2021.

Abstract

INTRODUCTION

Psoriasis is a chronic disease with intermittent flares and remissions. Each individual perceives the disease, its somatic effects, resultant dysfunction and related problems differently. This attitude is primarily determined by one's characterological traits and type of illness. A primary response to the diagnosis can be denial, underestimation, acceptance or overestimation of the disease. The aim of the study was to analyze the level of illness acceptance and its effect on the quality of life in moderate psoriasis depending on sociodemographic and clinical characteristics of the patients.

MATERIALS AND METHODS

The study included 186 patients with plaque psoriasis with Psoriasis Area Severity Index (PASI) scores ≤10. The inclusion criteria of the study were duration of psoriasis >2 years, age ≥18 years, and lack of other somatic or mental disorders during three months preceding the study. The study participants completed the Acceptance of Illness Scale (AIS), Dermatology Life Quality Index (DLQI) as well as an original survey containing questions about their sociodemographic characteristics and information about their disease.

RESULTS

Mean AIS score for the study group was 24.3 pts. Patients older than 40 years presented with lower levels of illness acceptance than younger persons (p = 0.0311). Also, patients' sex and duration of psoriasis significantly affected the acceptance of the illness, with lower AIS scores found in women (p = 0.0092) and persons with a longer history of the disease (p = 0.0362). Mean DLQI score for the study group was 13.3 pts. A lower level of illness acceptance turned out to exert an unfavorable effect on the quality of life (QOL) in psoriasis (p = 0.0015; R = -0.33).

CONCLUSION

In this study, patients with psoriasis presented with a moderate level of the illness acceptance, and a significant correlation was found between this parameter and QOL.

摘要

引言

银屑病是一种具有间歇性发作和缓解的慢性疾病。每个人对该疾病、其躯体影响、由此导致的功能障碍及相关问题的认知都有所不同。这种态度主要由一个人的性格特征和疾病类型决定。对诊断的初始反应可能是对疾病的否认、低估、接受或高估。本研究的目的是根据患者的社会人口学和临床特征,分析中度银屑病患者对疾病的接受程度及其对生活质量的影响。

材料与方法

本研究纳入了186例斑块状银屑病患者,其银屑病面积和严重程度指数(PASI)评分≤10。研究的纳入标准为银屑病病程>2年、年龄≥18岁,且在研究前三个月内无其他躯体或精神疾病。研究参与者完成了疾病接受量表(AIS)、皮肤病生活质量指数(DLQI)以及一份包含其社会人口学特征问题和疾病信息的原始调查问卷。

结果

研究组的平均AIS评分为24.3分。40岁以上的患者对疾病的接受程度低于年轻患者(p = 0.0311)。此外,患者的性别和银屑病病程对疾病接受程度有显著影响,女性(p = 0.0092)和疾病病程较长的患者(p = 0.0362)的AIS评分较低。研究组的平均DLQI评分为13.3分。结果表明,较低的疾病接受程度对银屑病患者的生活质量(QOL)产生不利影响(p = 0.0015;R = -0.33)。

结论

在本研究中,银屑病患者对疾病的接受程度处于中等水平,且该参数与生活质量之间存在显著相关性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/47c5/8409783/7b36d3917b27/CCID-14-1139-g0001.jpg

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