Faculty of Health, 217199Sandnes. VID Specialized University, Sandnes, Norway.
Faculty of Health, 87368Oslo. VID Specialized University, Oslo, Norway.
J Intellect Disabil. 2023 Mar;27(1):40-53. doi: 10.1177/17446295211062390. Epub 2022 Jan 11.
People with profound and multiple learning disabilities are often excluded from the processes of knowledge production and face barriers to inclusion in research due to cognitive and communicative challenges. Inclusive research-even when intending to be inclusive-tends to operate within criteria that exclude people with profound and multiple learning disabilities. The aim of this article is to provide a state-of-the-art review of the topic of inclusive research involving people with profound disabilities and thereby challenge traditional assumptions of inclusive research. The review presents themes that will inform a discussion on how to challenge the criteria in ways that make it possible to understand inclusive research for people who communicate in unconventional ways. We argue that a fruitful way of rethinking inclusive research is by applying a sensory-dialogical approach that privileges the dialogical and sensory foundations of the research. We suggest this might be a way to understand inclusive research that regards the person's communicative and cognitive distinctiveness.
患有严重多重学习障碍的人通常被排除在知识生产过程之外，并且由于认知和沟通方面的挑战，他们在研究中也面临着融入的障碍。即使包容性研究旨在包容，它也往往在排除严重多重学习障碍者的标准内运作。本文的目的是对涉及严重残疾人士的包容性研究主题进行最新综述，从而挑战包容性研究的传统假设。这篇综述提出了一些主题，这些主题将为如何以一种能够让以非传统方式进行交流的人理解包容性研究的方式来挑战标准提供讨论。我们认为，重新思考包容性研究的一个富有成效的方法是应用一种感官对话方法，该方法优先考虑研究的对话和感官基础。我们建议，这可能是一种理解包容性研究的方式，即关注人的交际和认知独特性。
