Boyd Isabel, Hackett Thomas, Bewley Susan
Falmouth and Penryn Primary Care Network, C/O Penryn Surgery, Saracen Way, Penryn, Cornwall TR10 8HX, UK.
Penryn Surgery, Saracen Way, Penryn, Cornwall TR10 8HX, UK.
Healthcare (Basel). 2022 Jan 7;10(1):121. doi: 10.3390/healthcare10010121.
Primary care must ensure high quality lifelong care is offered to trans and gender minority patients who are known to have poor health and adverse healthcare experiences. This quality improvement project aimed to interrogate and audit the data of trans and gender minority patients in one primary care population in England. A new data collection instrument was created examining pathways of care, assessments and interventions undertaken, monitoring, and complications. General practitioners identified a sample from the patient population and then performed an audit to examine against an established standard of care. No appropriate primary care audit standard was found. There was inconsistency between multiple UK gender identity clinics' (GIC) individual recommended schedules of care and between specialty guidelines. Using an international, secondary care, evidence-informed guideline, it appeared that up to two-thirds of patients did not receive all recommended monitoring standards, largely due to inconsistencies between GIC and international guidance. It is imperative that an evidence-based primary care guideline is devised alongside measurable standards. Given the findings of long waits, high rates of medical complexity, and some undesired treatment outcomes (including a fifth of patients stopping hormones of whom more than half cited regret or detransition experiences), this small but population-based quality improvement approach should be replicated and expanded upon at scale.
初级保健必须确保为已知健康状况不佳且有不良医疗经历的跨性别者和性别少数群体患者提供高质量的终身护理。这个质量改进项目旨在调查和审核英格兰一个初级保健人群中跨性别者和性别少数群体患者的数据。创建了一种新的数据收集工具,用于检查护理途径、所采取的评估和干预措施、监测情况以及并发症。全科医生从患者群体中选取了一个样本,然后对照既定的护理标准进行审核。未找到合适的初级保健审核标准。英国多个性别认同诊所(GIC)各自推荐的护理时间表之间以及专业指南之间存在不一致。使用一项国际二级保健循证指南发现,多达三分之二的患者未接受所有推荐的监测标准,这主要是由于GIC与国际指南之间存在不一致。必须制定基于证据的初级保健指南以及可衡量的标准。鉴于存在等待时间长、医疗复杂性高以及一些不良治疗结果(包括五分之一的患者停止使用激素,其中一半以上表示后悔或有变回原性别经历)的调查结果,这种规模虽小但基于人群的质量改进方法应在更大范围内进行推广和扩展。