NIHR Mental Health Policy Research Unit, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King's College London, Denmark Hill, London, SE5 8AF, UK.
NIHR Mental Health Policy Research Unit Complex Emotional Needs Lived Experience Working Group, Health Service and Population Research Department, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
BMC Psychiatry. 2022 Jan 28;22(1):72. doi: 10.1186/s12888-022-03711-x.
Individuals with Complex Emotional Needs (CEN) services, a working description to refer to the needs experienced by people who may have been diagnosed with a "personality disorder", face premature mortality, high rates of co-morbidity, service user and treatment costs. Service provision for this population is recurrently identified as needing to be transformed: there are serious concerns about quality, accessibility, fragmentation of the service system and the stigma and therapeutic pessimism service users encounter. Understanding clinician perspectives is vital for service transformation, as their views and experiences shed light on potential barriers to achieving good care, and how these might be overcome. In this study, we aimed to explore these views.
We used a qualitative interview design. A total of fifty participants from a range of professions across specialist and generic community mental health services across England who provide care to people with CEN took part in six focus groups and sixteen one-to-one interviews. We analysed the data using a thematic approach.
Main themes were: 1) Acknowledging the heterogeneity of needs: the need for a person-centred care approach and flexibility when working with CEN, 2) 'Still a diagnosis of exclusion': Exploring the healthcare provider-level barriers to providing care, and 3) Understanding the exclusionary culture: exploring the system-based barriers to providing care for CEN. Across these themes, staff highlighted in particular the need for care that was person-centred, relational, empathic, and trauma informed. Major barriers to achieving this are stigmatising attitudes and behaviour towards people with CEN, especially in generic mental health services, lack of development of coherent service systems offering clear long-term pathways and ready access to high quality treatment, and lack of well-developed structures for staff training and support.
Overall, the findings point towards clinician views as generally congruent with those of service users, reinforcing the need for priorities towards systemwide change to ensure that best practice care is provided for people with CEN. Particularly prominent is the need to put in place systemwide training and support for clinicians working with CEN, encompassing generic and specialist services, and to challenge the stigma still experienced throughout the system.
Staff working with this service user group report that delivering best practice care requires services to be flexible, integrated, and sustainably funded, and for staff to be supported through ongoing training and supervision.
有复杂情感需求(CEN)服务的个体,是指那些可能被诊断为“人格障碍”的人的需求的工作描述,他们面临着过早死亡、高共病率、服务使用者和治疗成本。为这一人群提供服务被反复认为需要转变:人们严重关注服务质量、可及性、服务系统的碎片化以及服务使用者所面临的污名化和治疗悲观主义。了解临床医生的观点对于服务转型至关重要,因为他们的观点和经验揭示了实现良好护理的潜在障碍,以及如何克服这些障碍。在这项研究中,我们旨在探讨这些观点。
我们使用了定性访谈设计。来自英格兰专门和通用社区心理健康服务机构的各种专业的 50 名参与者参加了六个焦点小组和十六个一对一访谈,他们为 CEN 提供护理。我们使用主题方法分析数据。
主要主题包括:1)承认需求的异质性:需要以患者为中心的护理方法和灵活性,2)“仍然是排除性诊断”:探索医疗保健提供者层面提供护理的障碍,3)理解排斥性文化:探索为 CEN 提供护理的系统障碍。在这些主题中,工作人员特别强调需要以患者为中心、关系、同理心和创伤知情的护理。实现这一目标的主要障碍是对 CEN 患者的污名化态度和行为,尤其是在通用心理健康服务中,缺乏发展提供明确长期途径和便捷获得高质量治疗的连贯服务系统,以及缺乏发展良好的员工培训和支持结构。
总体而言,研究结果表明,临床医生的观点与服务使用者的观点大致一致,这强化了系统优先考虑变革的必要性,以确保为 CEN 患者提供最佳实践护理。特别突出的是需要为从事 CEN 工作的临床医生提供系统范围的培训和支持,涵盖通用和专业服务,并挑战整个系统中仍然存在的污名化。
与该服务使用者群体合作的工作人员报告说,提供最佳实践护理需要服务具有灵活性、整合性和可持续性资金,并为工作人员提供持续的培训和监督。