Wale Janet L, Chandler David, Collyar Deborah, Hamerlijnck Dominique, Saldana Roberto, Pemberton-Whitely Zack
HTAi Patient and Citizen Involvement Interest Group (PCIG) Chair, Brunswick, VIC, Australia.
Psoriasis and Psoriatic Arthritis Alliance (PAPAA), St Albans, United Kingdom.
Front Med Technol. 2022 Jan 25;3:796344. doi: 10.3389/fmedt.2021.796344. eCollection 2021.
Health technology assessment (HTA) is intended to determine the value of health technologies and, once a technology is recommended for funding, bridge clinical research and practice. Understanding the values and beliefs expressed by patients and health professionals can help guide this knowledge transfer and work toward managing the expectations of end users. We gathered patient and patient group leader experiences to gain insights into the roles that patients and patient advocacy groups are playing. We argue that through partnerships and co-creation between HTA professionals, researchers and patient advocates we can strengthen the HTA process and better align with service delivery where person-centered care and shared decision making are key elements. Patient experiences and knowledge are important to the democratization of evidence and the legitimacy of HTAs. Patient preference studies are used to balance benefits with potential harms of technologies, and patient-reported outcomes (PROs) can measure what matters to patients over time. A change in culture in HTA bodies is occurring and with further transformative thinking patients can be involved in every step of the HTA process. Patients have a right to be involved in HTAs, with patients' values central to HTA deliberations on a technology and where patients can provide valuable insights to inform HTA decision-making; and in ensuring that HTA methodologies evolve. By evaluating the implementation of HTA recommendations we can determine how HTA benefits patients and their communities. Our shared commitment can positively effect the common good and provide benefits to individual patients and their communities.
卫生技术评估（HTA）旨在确定卫生技术的价值，并且一旦某项技术被推荐获得资助，就要在临床研究和实践之间架起桥梁。了解患者和卫生专业人员所表达的价值观和信念有助于指导这种知识转移，并努力管理最终用户的期望。我们收集了患者及患者群体领导者的经验，以深入了解患者和患者倡导团体所发挥的作用。我们认为，通过卫生技术评估专业人员、研究人员和患者倡导者之间的伙伴关系与共同创造，我们可以加强卫生技术评估过程，并更好地与以患者为中心的护理和共同决策为关键要素的服务提供保持一致。患者的经验和知识对于证据的民主化以及卫生技术评估的合法性很重要。患者偏好研究用于平衡技术的益处与潜在危害，患者报告结局（PROs）可以衡量随着时间推移对患者重要的事情。卫生技术评估机构的文化正在发生变化，通过进一步的变革性思维，患者可以参与到卫生技术评估过程的每一个环节。患者有权参与卫生技术评估，患者的价值观是卫生技术评估对某项技术进行审议的核心，患者可以提供有价值的见解以指导卫生技术评估决策；并且在确保卫生技术评估方法不断发展方面。通过评估卫生技术评估建议的实施情况，我们可以确定卫生技术评估如何使患者及其社区受益。我们的共同承诺可以对共同利益产生积极影响，并为个体患者及其社区带来益处。
