School of Public Health and Social Policy, University of Victoria, Victoria, BC, Canada.
CIHR Health Systems Impact Postdoctoral Fellow/Victoria Hospice and The Institute on Aging and Lifelong Health, University of Victoria, Victoria, BC, Canada.
Palliat Med. 2022 Apr;36(4):609-624. doi: 10.1177/02692163221078475. Epub 2022 Feb 17.
Lesbian, gay, bisexual, transgender, and queer plus (LGBTQ+) adults face challenges accessing end-of-life care. Understanding the experiences of LGBTQ+ persons within the end-of-life context is crucial in addressing their needs and supporting equity at end of life.
Review recent literature documenting the experiences of LGBTQ+ adults nearing end-of-life, identifying needs, barriers to care, and translating this into clinical recommendations.
A rapid review design was chosen for prompt results. The process was streamlined by limiting the literature search to peer-reviewed articles, dissertations, theses, by date and language. Data collection used a predetermined set of items based on Meyer's Minority Stress and Bronfenbrenner's Ecological Models including participants' voices, needs, and barriers. Thematic analysis of collected data was conducted and presented results in a narrative summary.
We searched six electronic databases (PubMed, Medline, ProQuest Dissertations and Theses A&I, ProQuest Dissertations and Theses, Open Access Theses and Dissertations, CINAHL, and Google Scholar) for articles published from 2016 to 2020.
We included and appraised for quality 33 articles. We uncovered three latent themes: systemic barriers, a lack of lived experience within the literature, and treatment of LGBTQ+ as one homogeneous group.
The hybrid Meyer's Minority Stress and Bronfenbrenner Ecological model elucidated how stressors and social contexts may impact LGBTQ+ adults when accessing end-of-life care. Incorporating LGBTQ+ cultural competence training into continuing education and ensuring that LGBTQ+ individuals participate in the development of end-of-life care programming may better attend to the needs of this population.
女同性恋、男同性恋、双性恋、跨性别和酷儿加(LGBTQ+)成年人在获得临终关怀方面面临挑战。了解 LGBTQ+ 人群在临终关怀背景下的经历对于满足他们的需求和支持临终关怀的公平性至关重要。
回顾最近的文献,记录 LGBTQ+ 成年人临终前的经历,确定需求、护理障碍,并将其转化为临床建议。
选择快速审查设计以获得快速结果。通过将文献检索限于同行评议的文章、论文、论文,按日期和语言进行限制,简化了该过程。数据收集使用基于 Meyer 的少数群体压力和 Bronfenbrenner 的生态模型的预定项目集,包括参与者的声音、需求和障碍。对收集的数据进行主题分析,并以叙述性摘要呈现结果。
我们在六个电子数据库(PubMed、Medline、ProQuest Dissertations and Theses A&I、ProQuest Dissertations and Theses、Open Access Theses and Dissertations、CINAHL 和 Google Scholar)中搜索了 2016 年至 2020 年发表的文章。
我们纳入并评估了 33 篇文章的质量。我们发现了三个潜在主题:系统障碍、文献中缺乏生活经验以及将 LGBTQ+ 视为一个同质群体。
混合的 Meyer 的少数群体压力和 Bronfenbrenner 生态模型阐明了压力源和社会环境如何在 LGBTQ+ 成年人获得临终关怀时产生影响。将 LGBTQ+ 文化能力培训纳入继续教育,并确保 LGBTQ+ 个人参与制定临终关怀计划,可能会更好地满足这一人群的需求。