Division of Palliative Medicine, Department of Medicine and Goldfar, Goldfarb School of Nursing, Washington University St Louis and Barnes Jewish Hospital, St. Louis, MO, USA.
Division of Palliative Medicine, School of Medicine, Washington University St Louis, St. Louis, MO, USA.
J Soc Work End Life Palliat Care. 2022 Apr-Jun;18(2):146-159. doi: 10.1080/15524256.2022.2046236. Epub 2022 Mar 12.
Research has demonstrated a lack of support for hospice caregivers and a higher than average level of self-reported anxiety and depression. While online support groups are gaining popularity, few protocols have been published, little research has demonstrated the skills required to facilitate, and virtually no data has explored the clinical outcomes affiliated with participation in such groups. This paper presents the preliminary experience and results of a clinical trial testing the use of online support groups designed to both educate and provide social support to caregivers of hospice cancer patients. A detailed protocol outlines educational strategies, discussion questions, and a blueprint outlining ways to engage participants. A review of field notes completed by the interventionist reveal specific facilitation skills and strategies used to engage participants. Finally, preliminary analysis of 78 participants shows the group is having a statistically significant impact on the caregiver depression.
研究表明，临终关怀护理人员得到的支持不足，且他们的焦虑和抑郁自评水平高于平均水平。虽然在线支持小组越来越受欢迎，但发表的相关协议很少，能够促进此类小组发展的相关技能研究也很少，几乎没有数据探索参与此类小组的临床结果。本文介绍了一项临床试验的初步经验和结果，该试验测试了使用在线支持小组的效果，这些小组旨在为临终关怀癌症患者的护理人员提供教育和社会支持。详细的方案概述了教育策略、讨论问题以及参与方式的蓝图。对干预者完成的现场记录的审查揭示了用于吸引参与者的具体促进技巧和策略。最后，对 78 名参与者的初步分析表明，该小组对护理人员的抑郁有显著的统计学影响。
