研究峰会五：优化神经运动障碍儿童从婴儿期到成年早期的过渡。
Research Summit V: Optimizing Transitions From Infancy to Early Adulthood in Children With Neuromotor Conditions.
机构信息
Division of Biokinesiology and Physical Therapy (Dr Sargent), University of Southern California, Herman Ostrow School of Dentistry, Los Angeles, California; Department of Physical Therapy (Dr Harbourne), Duquesne University, Rangos School of Health Sciences, Pittsburgh, Pennsylvania; Department of Physical Therapy (Dr Moreau), Louisiana State University Health Sciences Center-New Orleans, School of Allied Health, New Orleans, Louisiana; Departments of Physical Therapy and Human Movement Sciences and Pediatrics (Dr Sukal-Moulton), Northwestern University, Feinberg School of Medicine, Chicago, Illinois; Department of Physical Therapy (Dr Tovin), Nova Southeastern University, Fort Lauderdale, Florida; Department of Psychiatry (Dr Cameron), University of Pittsburgh, Pittsburgh, Pennsylvania; Department of Pediatrics (Dr Stevenson), University of Virginia School of Medicine, Charlottesville, Virginia; Faculty of Medicine and Health (Dr Novak), The University of Sydney, Sydney, Australia; Faculty of Medicine and Health (Dr Novak), Cerebral Palsy Alliance Research Institute, Discipline of Child and Adolescent Health, The University of Sydney, Sydney, Australia; Division of Physical Therapy (Dr Heathcock), The Ohio State University, School of Health and Rehabilitation Sciences, Columbus, Ohio.
出版信息
Pediatr Phys Ther. 2022 Jul 1;34(3):411-417. doi: 10.1097/PEP.0000000000000912. Epub 2022 Jun 1.
PURPOSE
The purpose of this executive summary is to review the process and outcomes of the Academy of Pediatric Physical Therapy Research Summit V, "Optimizing transitions from infancy to young adulthood in children with neuromotor disabilities: biological and environmental factors to support functional independence."
SUMMARY OF KEY POINTS
An interdisciplinary group of researchers, representatives from funding agencies, and individuals with neuromotor disabilities and their parents participated in an intensive 2.5-day summit to determine research priorities to optimize life transitions for children with neuromotor disabilities. Recommended priorities for research included (1) promoting self-determination and self-efficacy of individuals with neuromotor disabilities and their families, (2) best care at the right time: evidence-based best practice care, led and navigated by families seamlessly across the lifespan, (3) strengthening connections between developmental domains to enhance function and participation, and (4) optimal dosing and timing to support adaptive bone, muscle, and brain plasticity across the lifespan.
目的
本执行摘要旨在回顾儿科学会物理治疗研究峰会 V 的过程和结果，主题为“优化神经运动障碍儿童从婴儿期到青年期的过渡：支持功能独立性的生物和环境因素”。
要点总结
一组跨学科的研究人员、来自资助机构的代表以及神经运动障碍患者及其父母参加了为期 2.5 天的密集峰会，以确定研究重点，为神经运动障碍儿童的生活过渡提供最佳支持。建议的研究重点包括：（1）促进神经运动障碍患者及其家庭的自主性和自我效能感；（2）在适当的时间提供最佳护理：由家庭在整个生命周期中无缝领导和引导的循证最佳实践护理；（3）加强发育领域之间的联系，以增强功能和参与度；（4）优化剂量和时间，以支持整个生命周期中适应性骨骼、肌肉和大脑的可塑性。
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