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The Family Network Collaborative: engaging families in pediatric critical care research.

作者信息

Tamburro Robert, Pawluszka Ann, Amey Deborah, Tomanio Elyse, Coleman R Whitney, Suttle Markita, Eaton Anne, Beers Sue R, Van Kevin A, Grosskreuz Ruth, October Tessie W, DiLiberto Mary Ann, Willey Randi, Bisping Stephanie, Fink Ericka L

机构信息

Eunice Kennedy Shriver National Institute of Child Health and Human Development, Bethesda, MD, USA.

Children's Hospital of Michigan, Central Michigan University, Mt Pleasant, MI, USA.

出版信息

Pediatr Res. 2023 Feb;93(3):453-456. doi: 10.1038/s41390-022-02048-1. Epub 2022 Jun 7.

DOI:10.1038/s41390-022-02048-1
PMID:35672385
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9726989/
Abstract
摘要

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本文引用的文献

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Impressions of Early Mobilization of Critically Ill Children-Clinician, Patient, and Family Perspectives.危重症患儿早期活动的体会——临床医生、患者和家属的观点。
Pediatr Crit Care Med. 2018 Jul;19(7):e350-e357. doi: 10.1097/PCC.0000000000001547.
2
Patient and public engagement in priority setting: A systematic rapid review of the literature.患者和公众参与优先事项设定：文献系统快速综述。
PLoS One. 2018 Mar 2;13(3):e0193579. doi: 10.1371/journal.pone.0193579. eCollection 2018.
3
Ethical issues in pediatric genetic testing and screening.儿科基因检测与筛查中的伦理问题。
Curr Opin Pediatr. 2016 Dec;28(6):700-704. doi: 10.1097/MOP.0000000000000418.
4
Pediatric clinical research networks: current status, common challenges, and potential solutions.儿科临床研究网络：现状、常见挑战及潜在解决方案。
Pediatrics. 2010 Oct;126(4):740-5. doi: 10.1542/peds.2009-3586. Epub 2010 Sep 13.
5
Functional Status Scale: new pediatric outcome measure.功能状态量表：新的儿科结局指标。
Pediatrics. 2009 Jul;124(1):e18-28. doi: 10.1542/peds.2008-1987.
6
Assessment of parental presence during bedside pediatric intensive care unit rounds: effect on duration, teaching, and privacy.评估儿科重症监护病房床边查房时家长在场的情况：对查房时长、教学及隐私的影响
Pediatr Crit Care Med. 2007 May;8(3):220-4. doi: 10.1097/01.PCC.0000262798.84416.C5.
7
Collaborative Pediatric Critical Care Research Network (CPCCRN).协作性儿科重症监护研究网络（CPCCRN）
Pediatr Crit Care Med. 2006 Jul;7(4):301-7. doi: 10.1097/01.PCC.0000227106.66902.4F.
8
Report of the National Consensus Conference on Family Presence During Pediatric Cardiopulmonary Resuscitation and Procedures.
Pediatr Emerg Care. 2005 Nov;21(11):787-91. doi: 10.1097/01.pec.0000188877.41095.5a.