Department of Nursing, Chang Gung University of Science and Technology, Taoyuan, Taiwan.
School of Nursing, National Taipei University of Nursing and Health Sciences, No.365, Ming Te Rd, Pei Tou, District, Taipei, 11219, Taiwan.
BMC Psychiatry. 2022 Jul 15;22(1):475. doi: 10.1186/s12888-022-04126-4.
Dementia is a serious disease that can lead to disability because it impacts the individual's memory, cognition, behavior, and capacity to perform activities of daily living. While most people prefer to receive a full diagnostic disclosure, the actual care requirements of family caregivers of persons with dementia are often unknown after a dementia diagnosis is disclosed. The primary aim of this study was to explore the experiences of family caregivers in response to a dementia diagnosis disclosure and analyze the care needs of caregivers.
A qualitative study conducted in accordance with COREQ guidelines. The grounded theory approach was undertaken in 20 family caregivers of persons with dementia, who were selected using purposive sampling. Data were analysed using the constant comparative method.
The core category of this study was "diagnostic disclosure: Start the long road of care challenges", which was defined as describing the experiences of family caregivers of persons with dementia after first being informed of diagnosis. Five major categories describing the experiences of family caregivers following a dementia diagnosis was developed: 'deciding to seek medical attention,' 'the moment of disclosure,' 'conveying information,' 'maintaining the persons' functioning,' and 'receiving support and living well with dementia.' Subcategories within each major category also emerged.
Clear diagnostic disclosure is important for ensuring that positive developments can occur in response to disclosure. Healthcare professionals must develop strategies to prevent disclosure from triggering overreactive emotions from persons with cognitive impairments, assist them in understanding their illness in a tactful manner, and ensure that they understand how to cooperate in any subsequent care plans.
痴呆症是一种严重的疾病，可导致残疾，因为它会影响个体的记忆、认知、行为和日常生活活动能力。虽然大多数人更愿意接受全面的诊断披露，但在披露痴呆症诊断后，痴呆症患者的家庭照顾者的实际护理需求往往未知。本研究的主要目的是探讨家庭照顾者对痴呆症诊断披露的反应，并分析照顾者的护理需求。
根据 COREQ 指南进行的定性研究。采用目的抽样法选择了 20 名痴呆症患者的家庭照顾者进行了扎根理论研究。使用恒定性比较法分析数据。
本研究的核心类别是“诊断披露：开启护理挑战的漫长道路”，其定义为描述痴呆症患者家庭照顾者在首次被告知诊断后的经历。确定了五个主要类别来描述痴呆症诊断后的家庭照顾者的经历：“决定寻求医疗帮助”、“披露时刻”、“传达信息”、“维持人员的功能”和“在痴呆症中获得支持并过上良好的生活”。每个主要类别内还出现了子类别。
明确的诊断披露对于确保能够对披露做出积极反应至关重要。医疗保健专业人员必须制定策略，以防止披露引发认知障碍者的过度反应情绪，以巧妙的方式帮助他们了解自己的疾病，并确保他们了解如何配合任何后续的护理计划。
