Mongan Institute, Massachusetts General Hospital, Boston, Massachusetts, USA.
Department of Medicine, Northwestern Medicine, Chicago, Illinois, USA.
J Palliat Med. 2023 Feb;26(2):235-243. doi: 10.1089/jpm.2022.0052. Epub 2022 Sep 2.
Death anxiety is powerful, potentially contributes to suffering, and yet has to date not been extensively studied in the context of palliative care. Availability of a validated Death Anxiety and Distress Scale (DADDS) opens the opportunity to better assess and redress death anxiety in serious illness. We explored death anxiety/distress for associations with physical and psychosocial factors. Ancillary to a randomized clinical trial (RCT) of Dignity Therapy (DT), we enrolled a convenience sample of 167 older adults in the United States with cancer and receiving outpatient palliative care (mean age 65.9 [7.3] years, 62% female, 84% White, 62% stage 4 cancer). They completed the DADDS and several measures for the stepped-wedged RCT, including demographic factors, religious struggle, dignity-related distress, existential quality of life (QoL), and terminal illness awareness (TIA). DADDS scores were generally unrelated to demographic factors (including religious affiliation, intrinsic religiousness, and frequency of prayer). DADDS scores were positively correlated with religious struggle ( < 0.001) and dignity-related distress ( < 0.001) and negatively correlated with existential QoL ( < 0.001). TIA was significantly nonlinearly associated with both the total DADDS ( = 0.007) and its Finitude subscale ( ≤ 0.001) scores. There was a statistically significant decrease in Finitude subscale scores for a subset of participants who completed a post-DT DADDS ( = 0.04). Findings, if replicable, suggest that further research on death anxiety and prognostic awareness in the context of palliative medicine is in order. Findings also raise questions about the optimal nature and timing of spiritual and psychosocial interventions, something that might entail evaluation or screening for death anxiety and prognostic awareness for maximizing the effectiveness of care.
死亡焦虑是强大的,可能会导致痛苦,但迄今为止,在姑息治疗的背景下,尚未对此进行广泛研究。死亡焦虑和困扰量表(DADDS)的可用性为更好地评估和缓解严重疾病中的死亡焦虑提供了机会。我们探讨了死亡焦虑/困扰与身体和心理社会因素的关联。作为尊严疗法(DT)的随机临床试验(RCT)的辅助手段,我们在美国招募了 167 名患有癌症并接受门诊姑息治疗的老年患者(平均年龄 65.9[7.3]岁,62%为女性,84%为白人,62%为癌症 4 期)。他们完成了 DADDS 和 RCT 的几个步骤的多项措施,包括人口统计学因素、宗教斗争、与尊严相关的痛苦、存在质量生活(QoL)和终末期疾病意识(TIA)。DADDS 评分与人口统计学因素(包括宗教信仰、内在宗教信仰和祈祷频率)一般无关。DADDS 评分与宗教斗争呈正相关( < 0.001)和与尊严相关的困扰( < 0.001),与存在性 QoL 呈负相关( < 0.001)。TIA 与总 DADDS( = 0.007)及其有限性子量表( ≤ 0.001)得分呈显著非线性相关。对于完成 DT 后 DADDS 的一部分参与者,有限性子量表得分有统计学显著下降( = 0.04)。如果可以复制这些发现,则表明需要进一步研究姑息医学背景下的死亡焦虑和预后意识。这些发现还提出了有关精神和心理社会干预的最佳性质和时间的问题,这可能需要评估或筛查死亡焦虑和预后意识,以最大限度地提高护理效果。