Columbia University School of Nursing, New York, NY, USA.
University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Palliat Med. 2023 Jan;37(1):10-25. doi: 10.1177/02692163221122268. Epub 2022 Sep 8.
Frameworks are the conceptual underpinnings of the study. Both conceptual and theoretical frameworks are often used in palliative and end-of-life care studies to help with study design, guide, and conduct investigations. While an increasing number of investigators have included frameworks in their study, to date, there has not been a comprehensive review of frameworks that were utilized in palliative and end-of-life care research studies.
To summarize conceptual and theoretical frameworks used in palliative and end-of-life care research studies. And to synthesize which of eight domains from the National Consensus Project's Clinical Practice Guidelines for Quality Palliative Care (fourth edition) each framework belongs to.
Systematic review.
Four electronic databases (EMBASE, the Cumulative Index to Nursing and Allied Health, PsychINFO, and PubMed) were searched from July 2010 to September 2021.
A total 2231 citations were retrieved, of which 44 articles met eligibility. Across primary studies, 33,801 study participants were captured. Twenty-six investigators (59.1%) proposed previously unpublished frameworks. In 10 studies, investigators modified existing frameworks, mainly to overcome inherent limitations. In eight studies, investigators utilized existing frameworks referenced in previously published studies. There were eight orientations identified among 44 frameworks we reviewed (e.g. system, patient, patient-doctor).
We examined palliative and end-of-life research studies to identify and characterize conceptual or theoretical frameworks proposed or utilized. Of 44 frameworks we reviewed, 21 studies (47.7%) were aligned with a Clinical Practice Guideline's single domain, while the rest two or more of eight guidelines in quality palliative care domains.
框架是研究的概念基础。在姑息治疗和临终关怀研究中，通常同时使用概念框架和理论框架，以帮助进行研究设计、指导和开展调查。尽管越来越多的研究人员在研究中纳入了框架，但迄今为止，还没有对姑息治疗和临终关怀研究中使用的框架进行全面审查。
总结姑息治疗和临终关怀研究中使用的概念和理论框架，并综合分析《国家共识项目临床实践指南：优质姑息治疗（第四版）》中八个领域中的每一个框架所属的领域。
系统评价。
从 2010 年 7 月至 2021 年 9 月，检索了四个电子数据库（EMBASE、护理和联合健康累积索引、心理信息和 PubMed）。
共检索到 2231 条引文，其中 44 篇文章符合入选标准。在这些研究中，共纳入了 33801 名研究参与者。26 名研究人员（59.1%）提出了以前未发表的框架。在 10 项研究中，研究人员对现有的框架进行了修改，主要是为了克服其固有的局限性。在 8 项研究中，研究人员使用了之前发表的研究中引用的现有框架。我们共审查了 44 个框架，其中确定了 8 个方向（例如系统、患者、医患关系）。
我们对姑息治疗和临终关怀研究进行了检查，以确定和描述提出或使用的概念或理论框架。在我们审查的 44 个框架中，21 项研究（47.7%）与单一临床实践指南领域一致，其余两项或更多项研究则与优质姑息治疗领域的八项指南相关。
