患者参与 101 的共同开发和可用性测试：针对医疗保健专业人员、研究人员和受训者的儿童健康电子学习模块中的以患者为中心的研究课程。
Codevelopment and usability testing of Patient Engagement 101: a Patient-Oriented Research Curriculum in Child Health e-learning module for health care professionals, researchers and trainees.
机构信息
Division of Gastroenterology, Hepatology and Nutrition (Walsh, Jones), Department of Clinical Dietetics (Connan), SickKids Learning Institute (Walsh), SickKids Research Institute (Walsh, Jones, McCreath, Abuloghod, Macarthur) and Canadian Child Health Clinician Scientist Program (Pires), The Hospital for Sick Children (Walsh, Jones, McCreath, Abuloghod, Buchanan, Macarthur); Departments of Paediatrics (Walsh, Jones, Macarthur) and Physiology (Jones), and The Wilson Centre for Research in Education (Walsh), Temerty Faculty of Medicine (Walsh, Jones, Macarthur); Institute of Health Policy, Management, and Evaluation (Walsh, Buchanan), University of Toronto, Toronto, Ont.
出版信息
CMAJ Open. 2022 Oct 4;10(4):E872-E881. doi: 10.9778/cmajo.20210336. Print 2022 Oct-Dec.
BACKGROUND
Patient and family engagement is thought to improve the quality and relevance of child health research. We developed and evaluated the usability of Patient Engagement 101, an e-learning module designed to strengthen the patient-oriented research readiness of health care professionals, researchers, trainees and other stakeholders.
METHODS
The development of Patient Engagement 101 was co-led by a parent and a researcher and overseen by a diverse multistake-holder steering committee. The module was refined and evaluated using a mixed-methods usability testing approach with 2 iterative cycles of semistructured interviews, observations and questionnaires. We collected module feedback by way of semistructured interviews, the validated System Usability Scale, and satisfaction, knowledge and confidence questionnaires. Thematic coding of transcripts and field notes, informed by team discussions, guided the module revisions.
RESULTS
Thirty end-users completed usability testing (15 per cycle). In each cycle, we modified the module with respect to its content, learner experience, learner-centred design and aesthetic design. Participants were highly satisfied, and System Usability Scale scores indicated the module had the best imaginable usability. Substantial increases in the participants' knowledge test scores and the confidence to engage in patient-oriented research, but not self-rated knowledge, were observed after module completion.
INTERPRETATION
Codevelopment with patients and caregivers, and refinement through comprehensive end-user testing, resulted in a training resource with exceptional usability that improved knowledge and confidence to engage in patient-oriented research in child health. Patient Engagement 101 is openly available online, and the methods used to develop and evaluate it may facilitate the creation and evaluation of similar capacity-building resources.
背景
人们认为患者和家属的参与可以提高儿童健康研究的质量和相关性。我们开发并评估了患者参与 101 这一电子学习模块的可用性，该模块旨在增强医疗保健专业人员、研究人员、受训人员和其他利益相关者的以患者为中心的研究准备能力。
方法
患者参与 101 由一名家长和一名研究人员共同领导，并由一个多元化的多方利益攸关者指导委员会监督。该模块采用混合方法可用性测试方法进行了改进和评估，共进行了两轮半结构化访谈、观察和问卷调查。我们通过半结构化访谈、经过验证的系统可用性量表以及满意度、知识和信心问卷收集了模块反馈。主题编码的记录和实地笔记，以及团队讨论，为模块修订提供了指导。
结果
30 名最终用户完成了可用性测试（每轮 15 名）。在每一轮中，我们都根据模块的内容、学习者体验、以学习者为中心的设计和美学设计对其进行了修改。参与者非常满意，系统可用性量表的得分表明该模块具有最佳的可用性。在完成模块后，参与者的知识测试分数和参与以患者为中心的研究的信心显著提高，但自我评估的知识没有提高。
解释
与患者和照顾者共同开发，并通过全面的最终用户测试进行改进，最终得到了一个具有出色可用性的培训资源，该资源提高了儿童健康领域以患者为中心的研究的知识和信心。患者参与 101 在线公开提供，并且用于开发和评估它的方法可以促进类似能力建设资源的创建和评估。
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