Terry Amanda L, Bayliss Lorraine, Meredith Leslie, Law Eugene, Van Hoorn Rob, Regan Sandra
Centre for Studies in Family Medicine, Department of Family Medicine, Department of Epidemiology & Biostatistics, Schulich School of Medicine & Dentistry, Western University, 1151 Richmond Street, London, ON, N6A 3K7, Canada, 1 519-661-2111 ext 20049, 1 519-858-5029.
Transdisciplinary Understanding and Training on Research-Primary Health Care (TUTOR-PHC) Program, Western University, London, ON, Canada.
J Particip Med. 2025 Jun 5;17:e65485. doi: 10.2196/65485.
Patient engagement in research represents an evolution in how new knowledge is being created. Individuals and teams seeking to conduct research in this way want to learn how to best approach this aspect. Specialized training is required to ensure that these individuals and groups have the knowledge and skills to engage with and accomplish these goals. We developed a training program, called Patient-Oriented Research Training & Learning - Primary Health Care (PORTL-PHC), to address this need.
The objective of this paper was to describe key learning needs and knowledge gaps regarding patient-oriented research in primary health care, as well as the design, implementation, and evaluation of the PORTL-PHC program.
First, we completed a needs assessment to determine the learning needs of the program's target groups (including patient partners, policy makers, health care practitioners, and researchers). Second, building on the results of the needs assessment, the development and implementation of the program followed a series of iterative steps, including user testing of the program's content and format. Third, we conducted an evaluation with two components: (1) program registrants were asked to respond to questions as they progressed through the training content that explored what aspects of the content users found the most useful, suggestions for improvement, and any difficulties navigating the learning platform; and (2) program registrants were administered a questionnaire in three waves (January 2020, July 2020, and September 2021) 6 months after they had completed the program, that asked them to rate their gains in different areas of knowledge and skills regarding patient-oriented research on a 5-point Likert scale.
There were 205 learners who participated in the program from January 2018 to January 2022. The target audience was reached with registrants from all groups; the majority of learners were from Canada (194/205, 95%). A total of 6 main areas of knowledge needs were identified from the needs assessment, and the program was iteratively developed and refined to address these needs and our learning objectives. Suggestions for improvement received from the first component of the evaluation were used to enhance and refine the program. Of the 88 learners who had completed the program at the time of the evaluation questionnaire administration, 28 responded to our request to complete an evaluation. The results indicate that PORTL-PHC increased knowledge of patient-oriented PHC research (overall mean score of 4.36, SD .56). Learners gained skills and knowledge in identifying patient priorities in PHC (mean 4.27, SD .63), understanding the methods of patient engagement (mean 4.32, SD .65), and skills for engagement in patient-oriented research (mean 4.41, SD .50). The majority of respondents (23/28, 82%) indicated that they intended to use the information from the PORTL-PHC training program in the future.
Through the PORTL-PHC program, we are training a new cadre of interested individuals who are committed to patient engagement in research to improve the provision of primary health care, and thus, patient outcomes.
患者参与研究代表了新知识产生方式的一种演变。寻求以这种方式开展研究的个人和团队希望了解如何最好地处理这一方面。需要专门培训以确保这些个人和团体具备参与并实现这些目标的知识和技能。我们开发了一个名为“以患者为导向的研究培训与学习——初级卫生保健”（PORTL-PHC）的培训项目来满足这一需求。
本文的目的是描述关于初级卫生保健中以患者为导向的研究的关键学习需求和知识差距，以及PORTL-PHC项目的设计、实施和评估。
首先，我们完成了一项需求评估，以确定该项目目标群体（包括患者合作伙伴、政策制定者、医疗保健从业者和研究人员）的学习需求。其次，基于需求评估的结果，该项目的开发和实施遵循了一系列迭代步骤，包括对项目内容和形式进行用户测试。第三，我们进行了一项包含两个部分的评估：（1）要求项目注册者在学习培训内容的过程中回答问题，这些问题探讨了用户认为内容中最有用的方面、改进建议以及在学习平台上遇到的任何困难；（2）在项目注册者完成项目6个月后（2020年1月、2020年7月和2021年9月）分三轮向他们发放问卷，要求他们使用5点李克特量表对在以患者为导向的研究的不同知识和技能领域的收获进行评分。
2018年1月至2022年1月期间有205名学习者参加了该项目。所有群体的注册者都覆盖到了目标受众；大多数学习者来自加拿大（194/205，95%）。从需求评估中总共确定了6个主要知识需求领域，并且该项目经过反复开发和完善以满足这些需求和我们的学习目标。从评估的第一部分收到的改进建议被用于加强和完善该项目。在进行评估问卷调查时已完成项目的88名学习者中，有28人回应了我们完成评估的请求。结果表明，PORTL-PHC增加了对以患者为导向的初级卫生保健研究的了解（总体平均分为4.36，标准差为0.56）。学习者在确定初级卫生保健中的患者优先事项（平均分为4.27，标准差为0.63）、理解患者参与的方法（平均分为4.32，标准差为0.65）以及参与以患者为导向的研究的技能（平均分为4.41，标准差为0.50）方面获得了技能和知识。大多数受访者（23/28，82%）表示他们打算在未来使用PORTL-PHC培训项目中的信息。
通过PORTL-PHC项目，我们正在培训一批新的有兴趣的人员，他们致力于让患者参与研究以改善初级卫生保健的提供，从而改善患者的治疗效果。
