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[DNVF 备忘录:生命最后一年的卫生服务研究]

[DNVF Memorandum: Health Services Research in the Last Year of Life].

作者信息

Kremeike Kerstin, Bausewein Claudia, Freytag Antje, Junghanss Christian, Marx Gabriella, Schnakenberg Rieke, Schneider Nils, Schulz Holger, Wedding Ulrich, Voltz Raymond

机构信息

Zentrum für Palliativmedizin, Universitätsklinikum Köln, Köln, Deutschland.

Klinik und Poliklinik für Palliativmedizin, LMU Klinikum München, München, Deutschland.

出版信息

Gesundheitswesen. 2022 Oct 11. doi: 10.1055/a-1889-4705.

Abstract

This memorandum outlines current issues concerning health services research on seriously ill and dying people in the last year of their lives as well as support available for their relatives. Patients in the last phase of life can belong to different disease groups, they may have special characteristics (e. g., people with cognitive and complex impairments, economic disadvantage or migration background) and be in certain phases of life (e. g., parents of minor children, (old) age). The need for a designated memorandum on health services research in the last year of life results from the special situation of those affected and from the special features of health services in this phase of life. With reference to these special features, this memorandum describes methodological and ethical specifics as well as current issues in health services research and how these can be adequately addressed using quantitative, qualitative and mixed methods. It has been developed by the palliative medicine section of the German Network for Health Services Research (DNVF) according to the guidelines for DNVF memoranda.

摘要

本备忘录概述了过去一年中关于重症和临终患者的卫生服务研究的当前问题,以及为其亲属提供的支持。处于生命最后阶段的患者可能属于不同的疾病群体,他们可能具有特殊特征(例如,认知和复杂障碍患者、经济劣势或移民背景),并处于生命的特定阶段(例如,未成年子女的父母、老年)。针对生命最后一年的卫生服务研究制定专门备忘录的必要性源于受影响者的特殊情况以及生命这一阶段卫生服务的特殊特征。参照这些特殊特征,本备忘录描述了方法学和伦理方面的具体情况以及卫生服务研究中的当前问题,以及如何使用定量、定性和混合方法来充分解决这些问题。它是由德国卫生服务研究网络(DNVF)的姑息医学部门根据DNVF备忘录指南制定的。

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