Giehl Chantal, Suslow Anastasia, Vollmar Horst Christian, Chikhradze Nino, Otte Ina Carola
Department of Geriatric Medicine, Marien Hospital Herne, Ruhr University Bochum, Hölkeskampring 40, 44625, Herne, Germany.
Institute of General Practice and Family Medicine (AM RUB), Medical Faculty, Ruhr University Bochum, Bochum, Germany.
BMC Palliat Care. 2025 May 7;24(1):132. doi: 10.1186/s12904-025-01769-4.
This study explores the necessary considerations for preparing and conducting qualitative interviews with palliative care patients and their relatives. Palliative care patients are considered a vulnerable group, which raises ethical and methodological challenges for researchers. The study aims to address these challenges by emphasizing the importance of the relationship between researcher and participant, sensitive communication, and continuous self-reflection throughout the research process. Six semi-structured interviews were conducted with healthcare professionals in the field of palliative care. The results highlight four major themes that are constantly interacting and interrelated: relationship, communication, self-reflection and research framework. These factors are crucial in balancing the needs of participants with the demands of qualitative research. The findings suggest that a patient-centred, needs-oriented approach is fundamental to the collection of high-quality data, while simultaneously ensuring the well-being of both participants and researchers.
本研究探讨了对姑息治疗患者及其亲属进行定性访谈的准备和实施过程中的必要考量。姑息治疗患者被视为弱势群体，这给研究人员带来了伦理和方法上的挑战。该研究旨在通过强调研究人员与参与者之间关系的重要性、敏感沟通以及在整个研究过程中持续的自我反思来应对这些挑战。对姑息治疗领域的医疗专业人员进行了六次半结构化访谈。结果突出了四个不断相互作用和相互关联的主要主题：关系、沟通、自我反思和研究框架。这些因素对于平衡参与者的需求与定性研究的要求至关重要。研究结果表明，以患者为中心、以需求为导向的方法是收集高质量数据的基础，同时确保参与者和研究人员双方的福祉。
