Public and Patient Involvement Research Unit, School of Medicine, University of Limerick, Limerick, Ireland.
Health Research Institute, University of Limerick, Limerick, Ireland.
Front Public Health. 2022 Nov 10;10:1038409. doi: 10.3389/fpubh.2022.1038409. eCollection 2022.
What can we learn from the history of Public and Patient Involvement (PPI) in healthcare and research across global jurisdictions? Depending on region and context, the terminology and heritage of involvement in research vary. In this paper, we draw on global traditions to explore dominant themes and key considerations and critiques pertaining to PPI in order to inform a PPI culture shift in Ireland. We then describe the heritage of PPI in Ireland and present the case for combining methodological imperatives with policy drivers to support and encourage involvement. Specifically, we propose that PPI can be enriched by the theory and processes of participatory health research (PHR); and that implementation requires concurrent capacity building. We conclude with a call for Irish researchers (authors of this paper included) to consider the conceptual complexities and nuances of a participatory approach to build on the policy imperatives driving PPI and to contribute to the international evidence base and research culture. Specifically, we call for Irish health researchers and funders to consider and reflect on: (1) the rich literature of PHR as a resource for enacting meaningful PPI; (2) the roots and origins of varying participatory health research methods; (3) how community/patient groups can lead health research; and (4) co-learning and partnership synergy to create space for both academic and community expertise; and (5) the importance of using standardized reporting tools.
我们可以从全球不同司法管辖区的医疗保健和研究中公众和患者参与（PPI）的历史中学到什么？根据地区和背景的不同，参与研究的术语和传统也有所不同。在本文中，我们借鉴了全球传统，探讨了与 PPI 相关的主导主题、关键考虑因素和批评意见，以便为爱尔兰的 PPI 文化转变提供信息。然后，我们描述了爱尔兰 PPI 的传统，并提出了将方法学要求与政策驱动因素相结合以支持和鼓励参与的理由。具体来说，我们提出 PPI 可以通过参与式健康研究（PHR）的理论和过程得到丰富；并且实施需要同时进行能力建设。最后，我们呼吁爱尔兰研究人员（包括本文作者）考虑参与式方法的概念复杂性和细微差别，以利用推动 PPI 的政策要求，并为国际证据基础和研究文化做出贡献。具体来说，我们呼吁爱尔兰卫生研究人员和资助者考虑并反思：（1）PHR 的丰富文献作为实施有意义的 PPI 的资源；（2）各种参与式健康研究方法的根源和起源；（3）社区/患者群体如何领导健康研究；（4）共同学习和伙伴关系协同作用，为学术和社区专业知识创造空间；（5）使用标准化报告工具的重要性。
