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评估一种用于支持自我管理的灵活、集成的物联网连接哮喘(C4A)系统的技术可行性:一项探索患者和医疗保健专业人员观点的混合方法研究。

Assessing the technical feasibility of a flexible, integrated Internet-of-things connected for asthma (C4A) system to support self-management: a mixed method study exploring patients and healthcare professionals perspectives.

作者信息

Hui Chi Yan, McKinstry Brian, Mclean Susannah, Buchner Mark, Pinnock Hilary

机构信息

Asthma UK Centre for Applied Research, Usher Institute, The University of Edinburgh, Edinburgh, UK.

Usher Institute, The University of Edinburgh, Edinburgh, UK.

出版信息

JAMIA Open. 2022 Dec 30;5(4):ooac110. doi: 10.1093/jamiaopen/ooac110. eCollection 2022 Dec.

Abstract

BACKGROUND

A connected system with smart devices could transform patient care and empower patients control of their asthma.

OBJECTIVE

To explore how a connected-for-asthma system (C4A) with smart devices from multiple companies (smart-inhaler; smart-watch; smart-peak-flow meter, manual digital thermometer during the Coronavirus disease (COVID)-pandemic) could support asthma self-management.

METHODS

In a proof-of-concept mixed-methods study (Winter 2021/2022), we collected data from devices linked via the C4A app enabling patients to self-monitor and share a monitoring summary (in PDF format) with their clinician. Ten patients (range of age/gender, asthma experience, Apple/Android user) via social media, used C4A for a month. We conducted pre/post-interviews with patients, and a single post-interview with an asthma nurse and 3 general practitioners. Thematic analysis, informed by the Unified Theory of Acceptance and Use of Technology was triangulated with descriptive analysis of usage data.

RESULTS

The system was perceived as "easy" to use. During the study, 7517 data points were collected from 10 patients; monitoring reduced over the month. Patients used devices if they trusted their "accuracy," and adopted the system to monitor new medication or assess troublesome symptoms. One patient lost contact (because of COVID), 8 wanted to keep using C4A to manage their asthma, though were selective about the most useful devices. Clinicians wanted the report to provide an asthma score/status and reliever usage.

CONCLUSION

A connected system could enable flexible digital care by linking data from several devices to support self-management. To promote adoption/adherence, setup has to be simple, and patients need to trust that the devices accurately reflect their condition.

摘要

背景

一个与智能设备相连的系统可以改变患者护理方式,并让患者能够自主控制哮喘病情。

目的

探讨一个与多家公司的智能设备(智能吸入器、智能手表、智能峰值流量计、新冠疫情期间的手动数字温度计)相连的哮喘相关系统(C4A)如何支持哮喘自我管理。

方法

在一项概念验证性混合方法研究(2021年冬季/2022年)中,我们从通过C4A应用程序连接的设备收集数据,使患者能够自我监测并与临床医生分享监测总结(以PDF格式)。通过社交媒体招募了10名患者(年龄/性别范围、哮喘经历、苹果/安卓用户),让他们使用C4A一个月。我们对患者进行了干预前/后访谈,并对一名哮喘护士和3名全科医生进行了一次访谈后调查。以技术接受与使用统一理论为指导的主题分析与使用数据的描述性分析相结合。

结果

该系统被认为“易于”使用。在研究期间,从10名患者那里收集了7517个数据点;在这一个月中监测数据有所减少。如果患者信任设备的“准确性”,他们就会使用这些设备,并采用该系统来监测新药物或评估令人烦恼的症状。一名患者失去了联系(由于新冠疫情),8名患者希望继续使用C4A来管理他们的哮喘,不过他们对最有用的设备有所选择。临床医生希望报告能提供哮喘评分/状态以及缓解药物的使用情况。

结论

一个相连的系统可以通过连接多个设备的数据来实现灵活的数字护理,以支持自我管理。为了促进采用/坚持使用,设置必须简单,并且患者需要相信这些设备能够准确反映他们的病情。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/76c8/9801970/99f422c53e2b/ooac110f1.jpg

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