School of Communication, Ariel University, Ariel, Israel.
Microsoft, Herzliya, Israel.
J Med Internet Res. 2023 Jan 31;25:e43754. doi: 10.2196/43754.
Medical research based on internet archive data, which in some ways is quite different from other data-based studies, is becoming more and more common. Despite its uniqueness and the challenges that characterize it, clear ethical rules designed to guide practitioners in this field have not yet been written. This article points to the lacuna that exists in legal and ethical texts today and offers an ethically balancing alternative. Among other features, the balance is based on the famous three laws of robotics by Asimov and a series of values, including transparency, accountability, fairness, and privacy.
基于互联网档案数据的医学研究在某些方面与其他基于数据的研究有很大的不同，这种研究越来越常见。尽管它具有独特性和特点，但尚未制定明确的伦理规则来指导该领域的从业者。本文指出了当今法律和道德文本中的空白，并提供了一种在伦理上平衡的替代方案。除了其他特点外，这种平衡还基于阿西莫夫著名的机器人三定律和一系列价值观，包括透明度、问责制、公平性和隐私性。
