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晚期疾病和生命末期患者的“慈悲之城”:一项试点研究。

"Compassionate City" in Patients with Advanced Illnesses and at the End of Life: A Pilot Study.

机构信息

New Health Foundation, 41004 Sevilla, Spain.

Palliative Care Team, Arnau de Villanova Hospital, 25198 Lleida, Spain.

出版信息

Int J Environ Res Public Health. 2023 Jan 26;20(3):2234. doi: 10.3390/ijerph20032234.

DOI:10.3390/ijerph20032234
PMID:36767601
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9914945/
Abstract

OBJECTIVES

To evaluate, in a Compassionate City pilot experience (Sevilla), the impact results on health in a population of people with advanced illness and at the end of life.

METHODS

The project was undertaken in Sevilla, Spain, between January 2019 and June 2020. A longitudinal, descriptive study was conducted using a longitudinal cohort design with two cross-sectional measurements, pre and post intervention. All patients who entered the program on the start date were included. The networks of care around people with advanced illness and at the end of life, palliative care needs, quality of life, loneliness, anxiety, depression, caregivers' burden and family satisfaction were evaluated. The interventions were conducted by community promoters assigned to the "Sevilla Contigo, Compassionate City" program.

RESULTS

A total of 83 people were included in the program. The average number of people involved in care at the beginning of the evaluations was 3.6, increasing to 6.1 at the end of the interventions. The average number of needs detected at the beginning was 15.58, and at the end of interventions, it was 16.56 out of 25. The unmet needs were those related to last wishes (40.7%), emotional relief (18.5%), entertainment (16%), help to walk up and down stairs (8.6%) and help to walk (6.2%). A total of 54.2% showed improved loneliness in the final evaluation. Out of 26 people evaluated for pre and post quality of life, 7 (26.9%) improved their quality of life in the general evaluation and 5 (19.2%) displayed improved anxiety/depression. A total of 6 people (28.6%) improved their quality-of-life thermometer scores. A total of 57.7% of caregivers improved their burden with a mean score of 17.8.

摘要

目的

在塞维利亚(西班牙)的一个同情城市试点经验中,评估对患有晚期疾病和生命末期的人群的健康产生的影响结果。

方法

该项目于 2019 年 1 月至 2020 年 6 月在西班牙塞维利亚进行。采用纵向描述性研究,使用纵向队列设计进行,有两次干预前后的横断面测量。所有在起始日期进入该计划的患者均被纳入。评估了围绕晚期疾病和生命末期患者的关怀网络、姑息治疗需求、生活质量、孤独感、焦虑、抑郁、照顾者负担和家庭满意度。干预由分配到“塞维利亚与你同在,同情城市”计划的社区推动者进行。

结果

共有 83 人参加了该计划。评估开始时,平均涉及护理的人数为 3.6 人,干预结束时增加到 6.1 人。开始时平均发现的需求数量为 15.58,干预结束时为 25 个需求中的 16.56。未满足的需求是与最后愿望(40.7%)、情感缓解(18.5%)、娱乐(16%)、上下楼梯帮助(8.6%)和行走帮助(6.2%)相关的需求。在最终评估中,54.2%的人孤独感得到改善。在 26 名接受治疗前后生活质量评估的人中,7 人(26.9%)在一般评估中生活质量提高,5 人(19.2%)焦虑/抑郁状况改善。总共 6 人(28.6%)提高了他们的生活质量温度计评分。总共 57.7%的照顾者的负担减轻,平均得分为 17.8。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/04d8/9914945/a9b222d3e9a4/ijerph-20-02234-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/04d8/9914945/4370690663f7/ijerph-20-02234-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/04d8/9914945/a9b222d3e9a4/ijerph-20-02234-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/04d8/9914945/4370690663f7/ijerph-20-02234-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/04d8/9914945/a9b222d3e9a4/ijerph-20-02234-g002.jpg

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Area-Based Compassionate Communities: A systematic integrative review of existing initiatives worldwide.基于区域的关爱社区:全球现有举措的系统综合评价。
Palliat Med. 2022 Mar;36(3):422-442. doi: 10.1177/02692163211067363.
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What defines the comprehensive assessment of needs in palliative care? An integrative systematic review.
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Palliat Med. 2021 Apr;35(4):651-669. doi: 10.1177/0269216321996985. Epub 2021 Mar 1.
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Duration of palliative care before death in international routine practice: a systematic review and meta-analysis.国际常规实践中死亡前姑息治疗的持续时间:系统评价和荟萃分析。
BMC Med. 2020 Nov 26;18(1):368. doi: 10.1186/s12916-020-01829-x.
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Implementation Models of Compassionate Communities and Compassionate Cities at the End of Life: A Systematic Review.生命末期的慈悲社区和慈悲城市实施模式:系统评价。
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