Department of Experimental and Clinical Medicine, University of Florence, Viale largo Brambilla 3, 50134 Florence, Italy.
Department of Geriatric Medicine, Division of Rheumatology AOUC, 50134 Florence, Italy.
Int J Environ Res Public Health. 2023 Jan 31;20(3):2512. doi: 10.3390/ijerph20032512.
Psychological concerns in Systemic Sclerosis (SSc) patients represent an important issue and should be addressed through non-pharmacological treatments. Thus, the aim of the present study was to assess the effects of the Mindfulness-Based Stress Reduction (MBSR) program on psychological variables and the perspectives and experiences of patients with an SSc diagnosis. Notably, 32 SSc patients were enrolled and assigned to either the intervention (MBSR) group or the waitlist group. Inclusion criteria were (i) age ≥ 18 years, SSc diagnosis according to EULAR/ACR diagnostic criteria and informed consent. Exclusion criteria were previous participation in any Mind-Body Therapy or psychiatric diagnosis. Quantitative and qualitative outcomes were investigated through clinometric questionnaires and individual interviews. MBSR did not significantly impact outcomes such as physical functionality, anxiety, hopelessness, depression, physical health status, perceived stress, mindfulness and mental health status. For the anger evaluation, statistically significant differences are found for both controlling and expressing anger, indicating that the MBSR program had a favorable impact. As for qualitative results, more awareness of daily activities, stress reduction in terms of recognizing the causes and implementing self-strategies to prevent them, adherence to therapy, and recognition of the effect of medication on their bodies were reported. In conclusion, it is important to highlight the absence of negative or side effects of the MBSR program and the positive impact on patients' experience and perspective; thus, we suggest this approach should be taken into account for SSc patients.
心理问题在系统性硬化症（SSc）患者中是一个重要问题，应通过非药物治疗来解决。因此，本研究旨在评估正念减压（MBSR）方案对心理变量的影响，以及对 SSc 患者的看法和体验的影响。值得注意的是，共纳入了 32 名 SSc 患者，他们被分配到干预组（MBSR）或候补组。纳入标准为（i）年龄≥18 岁，根据 EULAR/ACR 诊断标准诊断为 SSc，并签署知情同意书。排除标准为以前参加过任何身心疗法或精神科诊断。通过临床计量学问卷和个人访谈调查了定量和定性结果。MBSR 对身体功能、焦虑、绝望、抑郁、身体健康状况、感知压力、正念和心理健康状况等结果没有显著影响。对于愤怒评估，控制和表达愤怒都有统计学上的显著差异，这表明 MBSR 方案有积极的影响。就定性结果而言，患者更多地意识到日常活动，减少对识别原因和实施自我策略以防止它们的压力，坚持治疗，以及认识到药物对他们身体的影响。总之，重要的是要强调 MBSR 方案没有负面或副作用，并且对患者的体验和看法有积极的影响；因此，我们建议应考虑将这种方法用于 SSc 患者。
