Rawlings Gregg H, Novakova Barbora, Armstrong Iain, Thompson Andrew R
School of Social Sciences Nottingham Trent University Nottingham UK.
Health and Wellbeing Service, Sheffield IAPT Sheffield Health and Social Care NHS Foundation Trust Sheffield UK.
Pulm Circ. 2023 Jan 1;13(1):e12208. doi: 10.1002/pul2.12208. eCollection 2023 Jan.
Pulmonary hypertension (PH) can have a multifaced impact both on the affected individual and close family members. However there are relatively few studies that have sought to identify potential protective factors. Individual differences in ability to be self-compassionate are known to be implicated in adjustment in other long-term conditions and are now featuring in the provision of care for a number of conditions. This is a cross-sectional study that investigated the relationship between self-compassion, demographic, PH-related information, and measures of psychosocial functioning in adults with PH ( = 65) and caregivers ( = 29). Individuals with PH and caregivers of someone with PH completed self-report measures on demographic and clinical factors, anxiety, depression, self-compassion, and in those with PH, health-related quality of life, and in carers, caregiver burden. Data were analyzed using hierarchical regression analyses. Surprisingly, participants with PH and caregivers did not significantly differ on rates of depression ( = 0.19) or anxiety ( = 0.57) with both scoring relatively high. Components of self-compassion were associated with psychological functioning in both individuals and caregivers. Greater self-compassion was associated with fewer symptoms of anxiety and depression, and greater health-related quality of life in individuals with PH and lower burden in caregivers. More specifically, multiple regression analyses revealed after controlling for age, gender, and duration of PH, self-compassion was a significant predictor of anxiety and depression in people with PH, and of anxiety and caregiver burden in carers. These findings add to the evidence base indicating that there can be a range of burdens experienced by both people living with PH and their wider families. Further, this study uniquely suggests that psychological and supportive interventions that seek to build self-compassion may be useful to develop and test in this clinical group.
肺动脉高压（PH）对患者本人及其亲密家庭成员都会产生多方面的影响。然而，相对较少有研究试图确定潜在的保护因素。已知自我同情能力的个体差异与其他长期疾病的适应有关，并且现在在多种疾病的护理中也有所体现。这是一项横断面研究，调查了65名成年肺动脉高压患者和29名照料者的自我同情、人口统计学、与肺动脉高压相关的信息以及心理社会功能测量指标之间的关系。肺动脉高压患者及其照料者完成了关于人口统计学和临床因素、焦虑、抑郁、自我同情的自我报告测量，对于肺动脉高压患者还包括与健康相关的生活质量，对于照料者则包括照料负担。数据采用分层回归分析进行分析。令人惊讶的是，肺动脉高压患者和照料者在抑郁率（p = 0.19）或焦虑率（p = 0.57）上没有显著差异，两者得分都相对较高。自我同情的各个组成部分与患者本人和照料者的心理功能都有关联。更高的自我同情与较少的焦虑和抑郁症状相关，在肺动脉高压患者中与更高的与健康相关的生活质量相关，在照料者中与更低的负担相关。更具体地说，多元回归分析显示，在控制了年龄、性别和肺动脉高压病程后，自我同情是肺动脉高压患者焦虑和抑郁以及照料者焦虑和照料负担的显著预测因素。这些发现增加了证据基础，表明肺动脉高压患者及其更广泛的家庭可能会经历一系列负担。此外，本研究独特地表明，旨在培养自我同情的心理和支持性干预措施可能值得在这个临床群体中开发和测试。
