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照顾脑血管意外幸存者:家庭照顾者的经验。

Care for the cerebrovascular accident survivors: experiences of family caregivers.

机构信息

E. P. College of Education, Amedzofe, Ghana.

Department of Health, Physical Education and Recreation (HPER), University of Cape Coast, Cape Coast, Ghana.

出版信息

BMC Palliat Care. 2024 Jun 1;23(1):138. doi: 10.1186/s12904-024-01468-6.

Abstract

BACKGROUND

The role of family caregivers in the management of cerebrovascular accident survivors is invaluable. So far, there is a strong evidence affirming the effectiveness of family support for cerebrovascular accident survivors. Meanwhile, caring for cerebrovascular survivors can be labour and time intensive and pretty stressful for caregivers. The purpose of the study was to examine the lived experiences of family caregivers of cerebrovascular accident survivors in the Ho Municipality in the Volta Region of Ghana. This aims are to establish their caregivers' knowledge, preparedness, and impact of caregiving on the caregiver, and coping strategies caregivers adopted.

METHODS

Using a four-item (with 14 prompts) interview guide and descriptive phenomenological approach, we gathered and analysed data from 37 family caregivers in the Ho Municipality of Ghana.

RESULTS

We found that caregivers had limited knowledge about cerebrovascular disease-risk factors and were ill-prepared for their caregiving roles. Additionally, we found limited knowledge about coping strategies among the caregivers. We further report that some caregivers lost close relationships, and their jobs because of the caregiving, they also used fasting and prayer as coping strategies.

CONCLUSIONS

Caregivers suffered broken relationship, loss their jobs and incomes due to their caregiving roles. Moreover, some engaged in fasting and prayers, and alcohol use to cope with the stress associated with caring for the cerebrovascular accident survivors. We discussed the potential implications of our findings on the realisation of the Sustainable Development Goal 3.4. The aim of this goal is to reduce by 75% premature deaths due to cerebrovascular and other non-communicable diseases by 2030.

摘要

背景

在脑血管意外幸存者的管理中,家庭成员的作用是非常宝贵的。到目前为止,有强有力的证据证实家庭支持对脑血管意外幸存者是有效的。同时,照顾脑血管幸存者可能是劳动密集型和时间密集型的,对照顾者来说压力很大。本研究的目的是探讨加纳沃尔特地区霍市脑血管意外幸存者的家庭成员的生活体验。目的是确定他们的照顾者的知识、准备情况以及照顾对照顾者的影响,以及照顾者采用的应对策略。

方法

我们使用了一个由四个项目(包括 14 个提示)组成的访谈指南和描述性现象学方法,从加纳霍市的 37 名家庭照顾者那里收集和分析了数据。

结果

我们发现照顾者对脑血管疾病的风险因素的知识有限,对他们的照顾角色准备不足。此外,我们发现照顾者对应对策略的知识有限。我们进一步报告说,一些照顾者由于照顾而失去了亲密的关系和工作,他们还使用禁食和祈祷作为应对策略。

结论

照顾者因照顾角色而遭受破裂的关系、失去工作和收入。此外,一些人还通过禁食和祈祷以及饮酒来应对照顾脑血管意外幸存者带来的压力。我们讨论了我们的研究结果对实现可持续发展目标 3.4 的潜在影响。该目标的目的是到 2030 年,将因脑血管和其他非传染性疾病导致的过早死亡减少 75%。

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